1. < Post-COVID Recovery & COVID-19

Long Covid and Neurological Symptoms

Posted by berber19 @berber19, Jan 25 11:04pm

Hi all,

Wondering a few questions:

1. Have you experienced neurological symptoms from long COVID? If so, what are your symptoms?

2. How long have they lasted since they began?

3. How long after your illness did the symptoms start?

Thanks!

I am still sorting through some bizarre neurological symptoms and all began close to suspected Covid, but have no clear answers yet. But it’s been almost 9 months.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

itsmeagain | @itsmeagain | Feb 6 7:54am

This is my first time so please bear with me.
I’m itsmeagain and I developed CIDP-chronic inflammatory demylinating polyneuropathy! Yeah!
That was 4 years ago after my last Covid shot.
Three years later I’m just now learning to walk again. I’m either in a wheelchair or in bed. I’m 82 years young.
I’m being treated two days a month with immunoglobulin intervenous treatments which are not painful and don’t give me any side effects. This has been going on for about 3 years.
I live in a nursing home with a physical therapy dept. which is helping me to walk but still with a walker and a guide dragging my wheelchair behind me.
My symptoms are innumerable but include severe nerve damage, tingling and weakness in hands and feet, very poor balance, irritable bowel syndrome-I’ll stop there for now.
The ivig treatments have been helpful but I’ve now reached a plateau and don’t know what’s next nor does my neurologist.

We’ve also tried Lyrica but insurance wouldn’t pay. Also low dose Naltrexone but that doesn’t seem to be working either.
I can’t give up the treatments because they are helping but I’d like more so that perhaps I could go back to living in residential living.
Thanks for listening.
Any advice for me?
I hope I’ve done this right.

REPLY
1 reply
henrydowd | @henrydowd | Feb 11 8:39am

I have. It's been about 2 years since Covid. I have pins and needles type symptoms through out my body
Constant and ongoing.

REPLY
lkirnbauer | @lkirnbauer | Feb 12 9:42am
In reply to @itsmeagain "This is my first time so please bear with me. I’m itsmeagain and I developed CIDP-chronic..." + (show)
@itsmeagain

This is my first time so please bear with me.
I’m itsmeagain and I developed CIDP-chronic inflammatory demylinating polyneuropathy! Yeah!
That was 4 years ago after my last Covid shot.
Three years later I’m just now learning to walk again. I’m either in a wheelchair or in bed. I’m 82 years young.
I’m being treated two days a month with immunoglobulin intervenous treatments which are not painful and don’t give me any side effects. This has been going on for about 3 years.
I live in a nursing home with a physical therapy dept. which is helping me to walk but still with a walker and a guide dragging my wheelchair behind me.
My symptoms are innumerable but include severe nerve damage, tingling and weakness in hands and feet, very poor balance, irritable bowel syndrome-I’ll stop there for now.
The ivig treatments have been helpful but I’ve now reached a plateau and don’t know what’s next nor does my neurologist.

We’ve also tried Lyrica but insurance wouldn’t pay. Also low dose Naltrexone but that doesn’t seem to be working either.
I can’t give up the treatments because they are helping but I’d like more so that perhaps I could go back to living in residential living.
Thanks for listening.
Any advice for me?
I hope I’ve done this right.

Jump to this post

You poor thing! I don’t really have any advice for you, other than keep doing what you’re doing! After my first Covid shot, I had a metal taste in the back of my throat, my mother and sister also did and we all lost our taste and smell. It’s been over 2 years for me and I’ve also had 7 Stellate Ganglion Block injections which are suppose to bring back taste and smell. It hasn’t yet, but I’m not giving up HOPE as that’s all I have left. Nothing is really helping it come back, not even time…I can detect only salty, sweet or bitter on my tongue, but not any flavors of any kind. I guess I will be eating my look and texture for a while! I wish you luck and courage on your health journey!

REPLY
1 reply
itsmeagain | @itsmeagain | Feb 12 10:30am
In reply to @lkirnbauer "You poor thing! I don’t really have any advice for you, other than keep doing what..." + (show)
@lkirnbauer

You poor thing! I don’t really have any advice for you, other than keep doing what you’re doing! After my first Covid shot, I had a metal taste in the back of my throat, my mother and sister also did and we all lost our taste and smell. It’s been over 2 years for me and I’ve also had 7 Stellate Ganglion Block injections which are suppose to bring back taste and smell. It hasn’t yet, but I’m not giving up HOPE as that’s all I have left. Nothing is really helping it come back, not even time…I can detect only salty, sweet or bitter on my tongue, but not any flavors of any kind. I guess I will be eating my look and texture for a while! I wish you luck and courage on your health journey!

Jump to this post

Thanks. Yes we all need to have hope.
Blessings to you as well..
@it'smeagain

REPLY
View MoreView Less
Please sign in or register to post a reply.