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DiscussionSide Effects of Mavacamten (Camzyos)
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 hour ago | Replies (62)Comment receiving replies
Replies to "so do you have cardiomyopathy?"
← Return to Side Effects of Mavacamten (Camzyos)
DiscussionSide Effects of Mavacamten (Camzyos)
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 hour ago | Replies (62)
Yes, I have Hypertrophic Obstructive Cardiomyopathy since 2016. I have already had a septal myectomy in 2017. Still have symptems. It is what it is. After trying all these new meds...I am just better off living with the side effects. 🙁
I do know that some of these new meds have really helped a lot of people. My echos were better but the side effects killed me. I wound up having other problem after 2 days on Aficamten that had to be addressed with inflamation in my colon reaching 400 mcg. (normally under 50). Diarrhea for 3 months straight. Couln't leave the house. Never had that before. I am much better now after months of problems. Everything settled down. Proctologist and cardiologist both agree it was the new meds. I even had to have a colonoscopy. GRRRRR
Everything came back fine a few months later. Lesson learned 🙂