Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

fred101 | @fred101 | 3 days ago

In reply to @fenn47 "I have just listened to a very, very long advert for “Nerve Freedom” capsules Is this..." + (show)

Hi again,

Fred here in Coloraod with mynlast experience and please that All of us neuropathy suffers reach out to JFK for possible help from Germany and ay other countries who might have some really great ideas/solutions for this terrible condition!!! In my humble opine big farma and the Feds have wowrked together to promote/allow all these false doctors and non-regulated companies to rip all of us off and to no avail!!!

Lack of dependency on all these claims that are false annd misleading on
illnesses. Semper Fi.

dgjestson | @dgjestson | 2 days ago

I am guessing that "Mama Bear Oasis (Magnesium Body Butter" ), advertised for neuropathy relief, is yet another magic solution that doesn't work. Has anyone tried this for an extended period with improvement noted?

womanflowers38 | @womanflowers38 | 2 days ago

I have neuropathy in fingers. This morning I saw a on line advertisement about a product called Nerve Forte.
Does it really work?

Leonard | @jakedduck1 | 2 days ago

In reply to @mtn9pr "Can someone tell me if nerve forte helps with neuropathy" + (show)

@mtn9pr
I'd save my money if I were you.
Yesterday I saw a product that would CURE neuropathy in 30 seconds, yeah right.
Jake

John, Volunteer Mentor | @johnbishop | 2 days ago

In reply to @womanflowers38 "I have neuropathy in fingers. This morning I saw a on line advertisement about a product..." + (show)

Here's a search of Connect for members who have mentioned Nerve Forte - https://connect.mayoclinic.org/search/comments/?search=nerve%20forte

SusanEllen66 | @SusanEllen66 | 1 day ago

In reply to @womanflowers38 "I have neuropathy in fingers. This morning I saw a on line advertisement about a product..." + (show)

@womanflowers38 all I can say is there are so many “solutions” advertised for relief from neuropathy pain that are bogus. They are rip-offs
Nothing can heal neuropathy.
I use Aspercream, or any other cream that has lidocaine. That kills the pain.

ashleymeade | @ashleymeade | 1 day ago

If its out there I tried it. I have severe neuropathy from chemo drugs. Most things from accupuncture, chiro, herbals, lotions, etc... nothing relieved; however I am on Gabapentin and Duloxetine. I notice that if I miss a dose that pain is MUCH higher and if I take it before bed, I can actually sleep through the night.

heisenberg34 | @heisenberg34 | 1 day ago

In reply to @pain009123 "I had breast cancer many years ago and a short time later my feet started to..." + (show)

If you do a search for a treatment option called Scrambler Therapy, you'll see that it was initiall500. y designed to help chemotherapy patients. It "reprograms" pain signals into nonpain signals. It takes ten sessions, each session lasting about an hour. There are not a lot of places offering this therapy. It has been FDA cleared but is not covered by insurance. The cost is about $3500.00. Of course not everyone gets relief. Its success rate is about 80%. Something to look into. What is pain relief worth?