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DiscussionWhat is your average tacrolimus level? Hoping to reduce side effects
Transplants | Last Active: Feb 15 7:59am | Replies (22)Comment receiving replies
Replies to "I am 1 1/2 years heart transplant. My trough level target is now 7 I am..."
Hi, @nat1742, and Welcome to Connect! I see that you have shared information about your trough level for tacrolimus and I am wondering whether you have a question about it, or are having side effects. If you are comfortable, woud you share a little about your heart transplant experience? What brings you to Connect?
@nat1742, congrats on the new heart. How are you doing now?
Thanks for your reply. 7 sounds just about right for maintenance level from what I have read. 9.6 is at the level they had me at the first nine months. Then switched me cyclosporine because I was having all kinds of side effects. They just took me off cyclosporine because of headaches we couldn't control and put me back on tacrolimus plus double my dose of myfortic plus added 5mg of prednisone which I haven't taken since 6 months out from transplant. They just got me between a rock and a hard place.
Which doesn't make sense. Since I couldn't tolerate it the first time.