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@cheri53

Hi Reni, I too have not had this experience, but my daughter has and is now watching another. Hers are now found toe related to FMD Fibromuscular Dysplasia. She had a great surgeon at the Mayo clinic in Portland area but is now seeing a new neurosurgeon here in Boise area. This new one will be watched and hoping to fix within the next 6 months with a coil procedure. Not sure yours can be treated this way. I have MA and have had shots in my eye for more than 10 years to keep my vision, so I totally feel your fear of loosing your vision. As stated above, look to your surgeons, find the best, someone who has performed many, many successful ones, and pray !
God Bless, Cheri

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Replies to "Hi Reni, I too have not had this experience, but my daughter has and is now..."

Hi, @cheri53, and welcome to Mayo Clinic Connect. I can imagine feeling a lot of fear if I thought I might lose my vision. Glad your shots seem to be working to help you keep yours.

With all the acronyms in medicine, I wanted to confirm that you have been diagnosed with monomelic amyotrophy (MA)?