anyone have shortness of breath when on oxygen and walking

Posted by broach188 @broach188, Dec 18, 2024

I have shortness of breath when I walk can not breath good except when I am in a store and I push a cart .When I walk around my oxygen levels drop I have to sit down.Anyone else do this

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

@jenicamom

I am the same way. It is very upsetting, because I loose all independence as I can’t even walk from parking lot to grocery store.

Jump to this post

Thank you

REPLY
@hicopd

The highest setting on the Inogen one G5 which is same as Rove 6 is a 6 which gives you about the equivalent of just 1.25 continuous glow, so yeah WAY below a continuous flow setting.

I do my rowing using my stationary concentrator and gave to turn it up to 4 lpm CONTINUOUS flow to be able to row. My doc approves and likes me to stay >90% all the time. I can only exercise vigorously with the continuous flow at 4.

I can walk slowly using my Inogen on pulse @3 but if I want to push myself, I have to switch to continuous flow and increase the flow rate to 4 continuous. I cannot take my stationary concentrator out of the house. It’s too big & heavy.

By all means use a cart if you have a heavy machine or if tires you to wear or carry it. The more we do, the more we CAN do! I just slowly worked myself up for 16 minutes on the rowing machine, starting at 5 and then increasing a minute every 4th day. It’s slow and steady progress we need, not anything heroic.

Jump to this post

This is certainly enlightening! No wonder I don't do well on pulse flow. I see my pulmonologist this week and will talk to him about changing settings. Thank you.

REPLY
@vic83

I have an Inogen Rov 6 which replaced Inogen One 5.
On page 32 , 12.2 Pulse Setting CAUTION "The settings of this device may not correspond with the setting for devices that provide Continuous Flow Oxygen"
It also gives total volume per minute (ML/MIN) - that is not liters - for each setting
I have a 2L continuous flow prescription and cannot exercise with a Pulse flow setting of 2 as my O2 drops.
One learns a lot of strange things with illness
.

Jump to this post

Thanks for this. And, yes. One does learn a lot with illness - most of which I could have done without!

REPLY
@vic83

My prescription is in continuous flow liters, portable concentrators are usually pulse flow which is not the same thing. I set the pulse flow higher than the continuous flow to get a similar benefit.

Jump to this post

I had an inogen portable that never gave me enough oxygen. I was coming back from the shopping trip with sore muscles and headache . No matter how you set machines use an Oximeter to check your oxygen level. You will be surprised . If you turn a portable concentrator to its highest setting it will include more outside air to the “pulsed” action . Those settings on it are not ltrs. They are just settings on a knob. No portable oxygen concentrator can pulse deliver more than 3 ltrs. If you need more get a tank with a regulator and be nourished .

REPLY
@tcarson52

I use a walker to hold my 02 concentrator when I am out. I use the walker inside also it does help with the breathing

Jump to this post

I do the same or similar - use walker to hold portable inogen and takes the weight off so I can walk.

REPLY
@vic83

I have an Inogen Rov 6 which replaced Inogen One 5.
On page 32 , 12.2 Pulse Setting CAUTION "The settings of this device may not correspond with the setting for devices that provide Continuous Flow Oxygen"
It also gives total volume per minute (ML/MIN) - that is not liters - for each setting
I have a 2L continuous flow prescription and cannot exercise with a Pulse flow setting of 2 as my O2 drops.
One learns a lot of strange things with illness
.

Jump to this post

So too get the equivalent of 2 continuous, what does the Inogen need to be set to?

REPLY
@hellopam

So too get the equivalent of 2 continuous, what does the Inogen need to be set to?

Jump to this post

Mayo Rehab told me to look at output of the device. Unfortunately, prescriptions are on continuous flow not pulse flow. One would need to test using the portable pulse flow.
And of course, O2 saturation depends on what you are doing.
I check my O2 when exercising, but very difficult to get accurate O2 when exercising.
Ask your O2 prescribing doctor.

REPLY
@crystalena

I had an inogen portable that never gave me enough oxygen. I was coming back from the shopping trip with sore muscles and headache . No matter how you set machines use an Oximeter to check your oxygen level. You will be surprised . If you turn a portable concentrator to its highest setting it will include more outside air to the “pulsed” action . Those settings on it are not ltrs. They are just settings on a knob. No portable oxygen concentrator can pulse deliver more than 3 ltrs. If you need more get a tank with a regulator and be nourished .

Jump to this post

I agree with your comments

REPLY

The HIGHEST the inogen can deliver at its max setting of 6 is 1.25 liters. That’s only if you have a G5 or Rove 6. Other machines produce even less.

The Sequal Eclipse can deliver up to 3 liters/minute continuous flow but then will drain the battery rapidly. There may be one or two other machines that can produce 3 liters/minute continuous flow but same quick battery drain and these are heavier machines (15-20 pounds).

The 3 machines that offer 2 liters/minute continuous flow are about 8-10+ pounds with battery. I had a hard time carrying them for any length of time and used the pulse setting to conserve battery and only used continuous flow for sleeping. I prefer using a cart with these bigger, heavier machines, to conserve my energy. The 3 machines I’m familiar with are the Zen-O, Discovr by Bellascura and Liberty2. I’ve used all for a few days or longer.

REPLY
@vic83

Mayo Rehab told me to look at output of the device. Unfortunately, prescriptions are on continuous flow not pulse flow. One would need to test using the portable pulse flow.
And of course, O2 saturation depends on what you are doing.
I check my O2 when exercising, but very difficult to get accurate O2 when exercising.
Ask your O2 prescribing doctor.

Jump to this post

Thank you. Seeing my Dr. Thursday so I'll ask.

REPLY
Please sign in or register to post a reply.