Chronic thigh bilateral leg pain

I’m sorry to see what your husband is experiencing. He’s so young to have such a disabling condition. Was his EMG normal?

I’ll just add that I encountered something similar when I was in my 40’s. I was very active and ran, I suddenly got extremely sore, weak and stiff leg muscles. I posted a long post about it somewhere around here. It’s difficult to explain how sore, weak and stiff my legs were. I could barely function. Multiple tests were not helpful in bringing a diagnosis. I saw primary, neurologist, endocrinologist, orthopedist, and rheumatologist. The rheumatologist wrote my primary a letter saying that it appeared to be polymyalgia rheumatica, except I was too young. I’ve always wondered what it really was. It lasted about 6 months and gradually improved. My legs were not normal for at least a year. If I got it again, I’d work with a therapist to get the stiffness out.

Best of luck with everything. I hope he can find answers and sone treatment that helps.

Hello thank you for your response. I had stated EKG but meant EMG but yes he’s had two one by a regular neurologist and the other by the nueromuslcar specialist and both are normal.

His legs are very stiff in his hamstring area as his physical therapist had noticed.

I’m glad your legs are doing better. We are hoping his will improve with time if we don’t get answers after the muscle biopsy

I will likely never know what caused my condition. I pray it never returns. It was quite scary, as I feared I would never recover.

Have they checked his Magnesium? And did they do a GAD65 blood test?

While you were dealing with your leg issues was there anything you did to make it better? I recently bought him thigh compression sleeves as putting pressure on his legs provides him with slight relief. I don’t think he has had either of those checked.

YES @pbeck95!!! What you described is a problem a first had on my journey with my complicated spine issues. I went through all that testing, and it was negative. It turns out it was nerves being impinged in my facet joints, and the nerve roots exiting my spine at L3 L4, L5. I went for diagnostic radio frequency of glacier also called RFA it’s non-invasive and non-medicine and it corresponded to the pain in my thighs. There was pain in my upper mid and lower thighs above my knees, and it corresponds to particular nerve roots, exiting particular facet joints. It’s non-invasive and a good pain management Doctor Who does RFA will diagnose which facet joints are the culprits and then a late three of them at a time or maybe six on one side. The pulse method did not work for me only the heat method. And sometimes I had to go twice for them to knock out the nerve root. The first ones I had lasted for about 13 years eventually I needed orthopedic surgery on my spine after 20 years. I remember it was so horrible at a certain point not being able to sleep at night and not being able to get into a comfortable position. Good luck and I hope you find a good doctor that is equipped to do radio frequency, ablation or radio frequency injection RFI (they’re the same things). In my case, I had stenosis in the facet joints, which means that there’s pressure on your nerves and bloodstream as it flows through the facet joints and it’s usually exacerbated when you try to exercise. Honestly, I don’t know why these things aren’t made more commonly available to people and their doctors don’t know and recommend. Good luck.! I hope it is your answer.!

I don’t know where my edit button went, but it was supposed to be ablation and not glacier! L O L

@pbeck95
Has your husband seen an orthopedic spine specialist to review his MRIs, especially cervical and lumbar spine which can impact legs? Anything compressed in your spine will not show up in an EMG. He may have a disc bulge or herniation compressing his spinal cord/nerve roots/nerves and causing leg pain. Compression in neck can also affect legs.

Nothing helped my symptoms. My legs didn’t hurt if I was completely still. The pain was due to the soreness. They were as sore as if you had ran a marathon with no training. And so stiff! And WEAK! I could barely get out of a chair or walk up a couple of steps. All 3 sore, stiff and weak. So bizarre.

Also, for several years I had other issues that seemed unrelated….now I wonder. Also had 2 frozen shoulders at the same time! Later, muscle knot in back that lasted almost a year. Not all at the same time.

Hi, he has an appointment soon with his pain management doctor through the VA. I hope his doctor is open to RFA as he’s willing to try almost anything at this point. Did you have to convince your pain management doctor to try RFA with you? His doctors at the VA tend to be very hesitant with treatments due to not having a diagnosis.

Wow, as I read your description of it occurring after a long intense bike ride, I think of some kind of nerve compression near the coccyx or tailbone. Have you considered asking the VA for a consult at Mayo or at one of the large VA Medical Centers with a spine trauma specialty?