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Chronic thigh bilateral leg pain
Hello, my husband, a 31 one year old, has been dealing with persistent leg pain since October 2023. He went an intense long bike ride in October of 2023 and since then his legs have been sore. He describes the pain as his legs being inflated up with air similar to a balloon which has caused him leg weakness. There have been times where he has been unable to walk and stand for long periods of time and was using a wheel chair but he says it doesn’t make the pain better as it’s still there. He has received a MRI with contrast of his brain and all of his spine to rule of Multiple Sclerosis. They did not find lesions. He also tested negative for lupus. He has received a genetic test to rule out Kennedy’s disease which was also negative. He has past diagnosis of fibromyalgia and Bell’s palsy however his doctors don’t think it’s related to this ongoing leg pain and weakness. He is currently under the care of a rheumatologist and neuromuscular specialist and has seen a neurologist and pain management specialist who has been prescribing him tramadol for pain but lately it has not been helping him. I also want to add what he’s had blood work where he had deficiencies in vitamin b, d, and folic acid but states that he has not seen an improvement in his pain since taking vitamins. He has an appointment this month with his neuromuscular doctor where they finally agreed to do a muscle biopsy. They believed there wasn’t a point to this due to his EKG coming back normal but they finally agreed to the test. He is desperate for answers as he cannot walk for long time or take stairs without pain. Does anyone have any advice or suggestions on what to do next? Or has anyone known of someone that has dealt with something similar. Thank you.
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Well, why haven’t the dang doctors given him a diagnosis?! I’m sorry, but I have no patience for the VA. I was at the eye doctor and the nurse attending me gave me a horror story about her husband and his horrible arthritis. Her husband‘s arthritis is being neglected and he probably doesn’t have OA. He probably has gout so I gave her a whole bunch of helpful tips And she was astounded. If you are in San Diego, I suggest your husband get referred over to Ucsd and to the pain management clinic with Dr. furnish. When I went there 25 years ago, it was headed by Dr. Wallace and they offered me the RFA. It was covered because I have a diagnosis and your husband should have seen a doctor that deals with issues that emanate from the Spine.. He needs to be having X-rays and MRI, seeing an orthopedic surgeon and being in a good pain management system which the VA does not have. So even if you aren’t in San Diego, I know from experience that the VA doesn’t have good qualified pain management clinics so get referred to one outside and you’re going to have to help your husband as far as being his advocate to get what he needs because the VA is absolutely horrible and getting worse as the days go by. It’s the same story with all of our veterans. They get such shotty care. I can’t even tell you figure out a way to get out- I mean referred. I was misdiagnosed in the early 2000s three separate times! I finally wrote the commander to ask to be referred out in town where I got diagnosed properly. All sad but true! The doctors were way too young and on residency to be doing the work they were trying to do. They can’t diagnose properly things that are degenerative in nature. They rotate bases and they don’t see the same patient over the long haul. I hope at least you’re out of VA that has stationary doctors And not on the military base but out in town VA.
My friend had this sort of thing. Everything is (tests) coming back negative. Did an ultra sound of where the pain was to find out arteries were plugged up causing issues. Reamed him out put stent in good to go. This year he will do the other side. Seemed to help.