anyone have shortness of breath when on oxygen and walking

Posted by broach188 @broach188, Dec 18, 2024

I have shortness of breath when I walk can not breath good except when I am in a store and I push a cart .When I walk around my oxygen levels drop I have to sit down.Anyone else do this

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@hellopam

Yes! My Dr. tells me to walk but it's not doable because I can't breath. Frustrating! I'm ok in stores as long as I have a cart but even that is getting more difficult.

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If you are using a portable concentrator be sure to carry your Oximeter . The portable can only deliver so much . None of them can deliver over 3mm.

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@crystalena

If you are using a portable concentrator be sure to carry your Oximeter . The portable can only deliver so much . None of them can deliver over 3mm.

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To leave the house I have to take the portable concentrator - heavy though it is! I still get out of breath and it scares me. I walk inside - not as interesting but walking is walking!

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@hellopam

Is that an okay thing to do? I'll check with my dr. I remember a nurse telling me not to do that but don't remember why.

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Definitely discuss with your doctor.
If your prescription is in continuous flow and your portable is pulse flow, the settings do not correspond. Mayo rehabilitation brought that to my attention.
My Inogen product book also makes a statement that Pulse Flow is different than Continuous Flow.

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@hellopam

To leave the house I have to take the portable concentrator - heavy though it is! I still get out of breath and it scares me. I walk inside - not as interesting but walking is walking!

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I consent to using a cart . I don’t get low and I feel better too. Blessed Be , Crystalena❤️❤️

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@vic83

Definitely discuss with your doctor.
If your prescription is in continuous flow and your portable is pulse flow, the settings do not correspond. Mayo rehabilitation brought that to my attention.
My Inogen product book also makes a statement that Pulse Flow is different than Continuous Flow.

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Thank you for pointing that out! Guess I should have read the booklet. This could explain a lot of my issue.

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@crystalena

I consent to using a cart . I don’t get low and I feel better too. Blessed Be , Crystalena❤️❤️

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Mine is an Inogen - do you use a cart for a larger one? I couldn't move my larger one if i had to!

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I use a tank on a cart . It works well for me.

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@hellopam

Thank you for pointing that out! Guess I should have read the booklet. This could explain a lot of my issue.

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I have an Inogen Rov 6 which replaced Inogen One 5.
On page 32 , 12.2 Pulse Setting CAUTION "The settings of this device may not correspond with the setting for devices that provide Continuous Flow Oxygen"
It also gives total volume per minute (ML/MIN) - that is not liters - for each setting
I have a 2L continuous flow prescription and cannot exercise with a Pulse flow setting of 2 as my O2 drops.
One learns a lot of strange things with illness
.

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The highest setting on the Inogen one G5 which is same as Rove 6 is a 6 which gives you about the equivalent of just 1.25 continuous glow, so yeah WAY below a continuous flow setting.

I do my rowing using my stationary concentrator and gave to turn it up to 4 lpm CONTINUOUS flow to be able to row. My doc approves and likes me to stay >90% all the time. I can only exercise vigorously with the continuous flow at 4.

I can walk slowly using my Inogen on pulse @3 but if I want to push myself, I have to switch to continuous flow and increase the flow rate to 4 continuous. I cannot take my stationary concentrator out of the house. It’s too big & heavy.

By all means use a cart if you have a heavy machine or if tires you to wear or carry it. The more we do, the more we CAN do! I just slowly worked myself up for 16 minutes on the rowing machine, starting at 5 and then increasing a minute every 4th day. It’s slow and steady progress we need, not anything heroic.

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@taipan

unfortunately I have the same
trying to walk very slowly
will try intravenous laser treatment in January

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please let me know your results from laser, how you feel

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