1. < Polymyalgia Rheumatica (PMR)

Has everyone had their Shingles vaccine?

Posted by jlo2252 @jlo2252, Jun 22, 2024

Hi there. Just had my second shingles vaccine today. I did it because I do not want more pain and I have heard that Shingles is VERY painful!!
The injection itself stung a little bit, but I did not have any side effects from it.
If you are over the age of 50 you need to do this— protect yourself!

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

DadCue | @dadcue | Jan 26 9:20am
In reply to @jlo2252 "@megz I’ve been getting the flu shot every year for a long time and I’ve never..." + (show)
@jlo2252

@megz
I’ve been getting the flu shot every year for a long time and I’ve never had the flu.
I’ve taken a total of two Covid vaccines and I decided I’m not taking any more! I’m a Novid. I have never had Covid or tested positive for Covid (and they tested me a lot whenever I had asthma issues or bronchitis!)
I think I have a natural immunity to Covid even though I’m immune-suppressed,. It’s weird, I know . My sister has never never had Covid or tested positive either. When I told my pcp about this she told me her daughter also always tests negative and she’s the only one in family that didn’t get sick with Covid.
And I believe @dadcue here has never had covid either or tested positive for it. Are we medical oddities or naturally immune to Covid?
I still take all my other vaccines, just no more Covid boosters

Jump to this post

I’m a medical oddity for sure. I’m immunosuppressed but never have had Covid.. I don’t take any precautions anymore. My wife and daughters have been sick and tested positive and were worried I would die because I was vulnerable. I never tested positive and we never isolated so I was exposed. I was vaccinated but so were my wife and daughters and they still had Covid multiple times. I was told my vaccine might not be very effective because I was on prednisone.

I am susceptible to infections. I have an autoimmune disorder that derives its name from a reaction to infections. It is called reactive arthritis. I am prone to infections but my immune stystem is called “over reactive” to infections. All hell breaks loose when I have an infection. I don’t get terribly sick, but the infections persist and my whole body has pain.

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jlo2252 | @jlo2252 | Jan 27 7:46am
In reply to @dadcue "I’m a medical oddity for sure. I’m immunosuppressed but never have had Covid.. I don’t take..." + (show)
@dadcue

I’m a medical oddity for sure. I’m immunosuppressed but never have had Covid.. I don’t take any precautions anymore. My wife and daughters have been sick and tested positive and were worried I would die because I was vulnerable. I never tested positive and we never isolated so I was exposed. I was vaccinated but so were my wife and daughters and they still had Covid multiple times. I was told my vaccine might not be very effective because I was on prednisone.

I am susceptible to infections. I have an autoimmune disorder that derives its name from a reaction to infections. It is called reactive arthritis. I am prone to infections but my immune stystem is called “over reactive” to infections. All hell breaks loose when I have an infection. I don’t get terribly sick, but the infections persist and my whole body has pain.

Jump to this post

Yes, we are medical oddities for sure! As you know I also have had reactive arthritis since my mid-twenties ( I’m 75 now) and on top of that, I’m also asthmatic and diabetic ( both conditions genetic in my family)
It is very strange and I certainly count my blessings that I never got Covid or flu!

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juliemcgee62 | @juliemcgee62 | Jan 28 11:34am

Shingles vaccine gave me PMR

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bluesteno | @bluesteno | Feb 2 9:43am

I had my 1st shingles vaccine on 10/31/22 and PMR symptoms started within 2 days. My doctors don't agree if these were related- my PCP says any vaccine can trigger PMR, and my Rheumatologist and Mayo Rheumatologists both said it was just bad luck - a coincidence. Either way, I have been told not to get the 2nd shot. My PMR diagnosis led to more trouble - Mayo diagnosed ANCA associated vasculitis 11 months after the PMR. Apparently the vasculitis had been barely active for decades with only mild effects on my hearing and main airway and the vaccine woke it up. I'm just waiting for remission and playing the Prednisone game. I don't want to blame the vaccine, but really wish I hadn't done it. I was so healthy 3 years ago.

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