Neuropathy: What works and what are scams?

I agree. These people are despicable. But, I suppose that there are some of their patients with less severe pain that actually do receive some form of relief, even if it's all in their head. So, the scammers can use them as proof that their "system" actually does work. It might take a class action suit to bring them down. Then, how would you even find all the people taken in by these phonies?

I think you’re referring to Sackett of Purdue Pharma.

I am so sorry to hear from you all about your problens and GO Syndrome (Growing Older!!!)

I sent in a detailed response regarding my experiences but not sure it got read or distributed??!!

I am an 80 year old Vietnam Veteran and have been suffering from PN for about 8 years now as it has gotten so much worse. I have tried about everything out there including 2 Ketamine treatments, ablation treatments, alll kinds of useless pills and supplements and nothing has helped much!!? I use a lot of Sombra Lotion and gives some temporary relief that I purchase through Amazon as they started raising the price when they got positive feedback!!

My PN has now spread from my feet up through my knees and all around my midsection and back down through my groin. Also arms are now numb with tingling, itchy pain that is all over my body and even now extending into my face eyes, ears and left side of face. I a recovering from a terrible case of Covid (worst flu I have ever had in my life) and wished God would call me up at time. My stong belief in God, the love of my life and BFF lovely wife and my fabulous and caring family I am now back and will start light exercies this week and walking with the Hike shoes.

Unfortunatly old age and disease seem to affect us all differently, but I keep praying to our Lord and Savior that something will be found soon to help at least curb some of the terrific pain. Maybe now that we have some good and carring leadership in this once wonderful country we will continue to immerge!!! I am also highly allergic to meds and opiates so nothing there. The stupid people at the ER VA here in Western Colorado even prescribed taking Predizone which is really bad stuff- knocked out my immune system and gave me double pneumonia back many years ago!!! The VA has really slipped around here again!! Semper Fi

guess I'll weigh in...My non diabetic neuropathy probably stems from alcohol abuse. And abuse it I did, after the large and small cell tests, it was determined mine was small and a regimen of gaba was instituted. 800 mg 3x day, eventually switched me to duloxetine 60 mg 2x day and pregabalin 200mg 3x day and my regular NP suggested folinic plus vitamin. B complex with the duloxetine. so I take 1 dulox and 1 folinic every morning and it lasts till about 3 or 4 pm it seems. then it's another dulox and anywhere from 1 to 3 of my pregabs. anyway, no cure and I constantly hear the ads from chiropractors about how they can help.....best of luck to all

I am just joining this chat and also have foot neuropathy....I was diagnosed with Diabetes 2 18 mos. ago and I waited months to see a endocrinologist thinking that he would be able to help out with this problem. Basically, have little feeling on the soles of my feet and my left foot and ankle can sometimes be swollen. My primary doctor was worried about blood clots but ultrasounds showed nothing. Of course, I never heard from her again.....I have very little faith in my primary doctors. The endocrinologist asked me to take off a shoe and rubbed the outer edge of my foot with something and said that the neuropathy isn't diabetes related. I asked him who should I see and he said a neurologist for an overall workup. That was in the fall and I called the neurologist for an appt. and the first available was March so I am waiting for that.
Hopefully, they might have an answer. I have read these chats and it appears that there are a lot of scams going on but I haven't had any experience so far but of course, I haven't delved into this problem much. Just waiting for my appointment. Was your neuropathy diagnosed by a neurologist? Any wisdom would be appreciated as I am a novice on this subject. Thanks

One of the best sites for learning more about neuropathy and available treatments is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/

Hello, @scain

Welcome to the Forum!

It's a tricky business, sorting out the scams from the legitimate sites. I remember finding it dizzying myself when I was first diagnosed in the summer of '02. This Forum, in addition to the Foundation for Peripheral Neuropathy, has proven itself to be a great helpmate.

I found that it took me about six months to become streetwise, curious yet skeptical when shown a "fix" that has the aroma of something too good to be true. There's no easy litmus test.

My best advice to anyone is probably to think twice – maybe ten times – before getting a credit card out. 🙂

My very best to you!
Ray (@ray666)

I agree. Total scam. I have been asking for a refund for over 2 months. All they tell me is that they are sending me something else “at no charge”. All I want is a refund. Period! No response. Guess if they don’t respond long enough, my “trial period” will expire. All this item did was shock me. Don’t have anything to do with this company.

Thank you for the sound advice susan

I know well this burning/freezing sensation. My doctor started me on Gabapentin (300mg) and iron supplements. Better but still a major issue . They I read about NA R-Alpha Lipoic Acid then discussed it with my Doctor, we agreed it was worth a try. After 2 months it’s amazing. Sleeping all night, no more burning/freezing in bed. The neuropathy is still there. My feet start the burning after a long drive, so I take my shoes and socks off. My diet is WHOLE FOODS. I hope this helps, Mike