Sudden dizziness

@brumasterj, thank you for sharing that you served in the Navy for this great Country! My dad and uncle were in the Navy in WWII, and many of my cousins going forward have and are serving. From Viet Nam to right now overseas.
And also welcome to Mayo Clinic Connect. I see you joined recently, and it looks like you are finding your way around here really well.
You share some great advice that @boatsforlife echoes and that which applies to all of us...drinking more water is good for the body!
Welcome aboard Mayo Clinic Connect! Have you been able to find any information that you have found helpful or enlightening?

Thank you! And what a blessing it was for me to serve on one of 4 battleships the Navy had at the time! USS Wisconsin BB64:)
it sure sounds like you come from a family that has some great military history:)
Yes just started going to mayo in phoenix on Dec 4
So yes im new:)
Its been nice to see such a great support group! I’ m really fortunate to be able to share my information here with others!
I really wished there was another way to reach out to others who have experienced what so many people on this platform have experienced!
So many people like my self have gone under diagnosed or misdiagnosed without knowing truly whats wrong!
We all have a story to tell and it needs to be shared to those that feel helpless!

Thanks for reaching out

My dad was on the YMS 302, a mine sweeper. They were the only wooden ships in the Navy. The mines wouldn't stick to them! No where near the mega sized battleships! How was the food?
He had some stories to tell, and other stories he took to his grave.
All who serve are worthy of our respect. Like the motto: All gave some. Some gave all. It is so true.
I'm pleased to hear how positive your experience here on Mayo Connect is.
I feel the same as you. I was misdiagnosed for several years with four or five different heart conditions. None of which I had. When I finally was correctly diagnosed at Mayo Rochester (affectionately known as The Mother Ship!) I was stunned.
First at what I had and how long I had been misdiagnosed, and second that I needed open heart surgery! I was not prepared for either of those things in one visit. It seems like a common thread in the HOCM community. Perhaps it is getting better as more and more patients are coming on board who are on Camzyos.
Mayo Clinic Connect is one-of-a-kind. No other patient forum exists like Connect. It is a blessing to be able to virtually connect with other people who have the same conditions and we can learn from each other. And it doesn't matter if you are a Mayo patient or not. All are welcome.
You never know who is reading what you have posted and how you may impact someone out there. I share Mayo Clinic Connect with many people I come in contact with. It has been such a wonderful place to feel safe to share my story and where others can identify with it.
So feel free! Go ahead and pass your good experience forward and share with all your friends and family or even strangers! You never know the impact you may have!
I've never been to Mayo Phoenix, but I have someone who just had a liver transplant there two months ago. They said the place is fantastic. I would expect nothing less from the Mayo.
Aside from you having HOCM, you sound pretty active and physically fit. That helps for sure.
You can be an inspiration to others! Keep us posted on your progress Sir 🙂

PS: I love your last line "We all have a story to tell and it needs to be shared to those who feel helpless." That is the exact reason Mayo Clinic Connect is here and you said it so well!

PSS: One of our esteemed Mentors, @johnbishop also served in the Navy I believe. He has some stories too. So glad you are here!

Thank you again:)
You said it right about not being prepared for the news!
My mayo cardiologist hit me with myectomy and i was not prepared to hear that!
He states lets get you on camzyos and get you feeling better while we schedule surgery in Rochester!
Well im feeling better than i have in years and Rochester called me today to schedule my consult!
Surgery is planned for the reason i live 430 miles from phoenix so the constant trips that are required to stay on camzyos is a bit of a financial burden, plus it is some what emotionally of a burden because of some of the symptoms i have on camzyos, weight gain and feeling puffy and heart palpitations that have gotten better over the last few weeks.
Thank you again:)
Ezekiel 36:26

That is great news about getting in to Rochester. I can testify with authority, they truly are the finest in the world at what they do. Dr. Steve Ommen is the top HCM doctor in the world.
You will be in the best place to be for HOCM.
I live in far, far northern California. Close to Oregon. I had to travel to Rochester for my consult and my septal myectomy. It is worth the effort and co$t to be in the best hands for this procedure.
I was not able to try Camzyos. But I have no regrets having open heart surgery. Not one. For one, I got my life back and don't need meds anymore. It's a one-and-done deal which was appealing to me as much as open heart surgery was appalling!
We are stronger than we know. Tougher then we can imagine. I have strong faith and knew in my little hypertrophic heart it was the right thing.
It is a blessing to be accepted to Mayo!

I am one of those for which Camzyos has not been a miracle drug. So I went to Cleveland Clinic because my Dr. in DC was not willing to increase my dosage from 5mg to 10mg to see if the increase would improve my quality of life and allow me to walk, go up stairs, etc., without shortness of breath. The CC Dr. was willing to increase my dosage to 10mg. When I told my DC Dr. suddenly he became willingly to increase my dosage to 10mg. I took the 10mg dosage for 28 days. Unfortunately, the 10mg dosage did not improve my exertion ability and I woke up on the 28th day of the higher dosage with the room spinning. It was really scary. My CC doctor suggested that I discontinue the 10mg., go back to 5mg, and consider surgery. The spinning stop the same day it started and has not returned . I am still waiting to hear back from my DC cardiologist. The lack of responsiveness is sinful. Needless to say I am looking for a DC cardiologist that is in the REMs program. It’s stressful enough having the condition; but my current DC cardiologist makes it worse. May none of you have this type of experience.

Thats too bad
Maybe the Cleveland Mayo can help find a supporting mayo doctor in DC
Good luck on finding the right Cardiologist, and from what I have read maybe surgery is your best option?
Im sure alot has to do with your health before, and after your diagnosis. And Maybe even age?
Type of HCM
Again good luck
Hope you can get ykur life back