← Return to Essential Thrombocytosis symptoms

Discussion

Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: Feb 13 1:02am | Replies (170)

Comment receiving replies
@nohrt4me

I believe that in 2004, the only way to diagnose ET was with a bone marrow biopsy. That's about the time my dad was diagnosed.

I wonder if you might have been misdiagnosed and actually had secondary thrombocytosis? Maybe a spontaneous remission? Unexplained things can happen. Hope your doc learns from your case in ways that will help all of us!

There is an inflammatory component to ET that diet and exercise can address. It doesn't reduce platelets for any patients I know, but it can help a lot with symptoms and reduce overall clot risk.

Sadly, there are many individuals and clinics out there claiming to cure all types of cancers with "natural" treatments, which turn out to be massive doses of vitamins or supplements (so not exactly "natural") that are very expensive and don't work.

I tried CBD oil for 8 weeks for sleeplessness when that was the big craze. Told GP I was doing it. She gave me tips. I researched it, purchased from a reputable compounding pharma with third-party testing. Gave myself the recommended dose. Ended up with acid reflux and still couldn't sleep. Doc said she wasn't surprised.

Jump to this post


Replies to "I believe that in 2004, the only way to diagnose ET was with a bone marrow..."

Hi nohrt4me,
Just today, I received my bone marrow results in just nine days and message from my O/H that now she thinks I may have PMF and not ET and maybe I should see a bone marrow transplant specialist after she gets my “risk assessment” results whatever those are. Such a big change in just one month and so little conflicting data on me! I know I need a second opinion for sure, but do not know how to get a reputable one since I chose a Kaiser Senior Advantage Plan when I just turned 65 and seemed fine which I still do! I just have strange conflicting data when docs check me.
Thanks for listening.