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I would like to hear from anyone who has had a lung transplant
Transplants | Last Active: Feb 7 6:37am | Replies (46)Comment receiving replies
I had a dbl lung tx July if 23.
Not to scare you but unfortunately mine was an absolute train wreck. I was doing better before transplant than I am after. Had many complications that almost did me in but my wonderful transplant team saw me through it.
I have many residual severe side effects to this day, but I am lucky enough to still be here. I am blessed and very grateful to my donor and donor's family for making the decision they did. In spite of all my post transplant afflictions that I live with every minute of every day I would do the transplant again. I might not be here right now otherwise.
My outcome is very rare, there are so very many who came through their transplants beautifully and are flying high.
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Hi, @kathy22.
I am so sorry about the complications you have been dealing with since your lung transplant. When we undergo a transplant, we definitely want and anticipate a better outcome. And we definitely don't want to feel worse than we did before the transplant. I'm glad, though, that you have a good transplant team who has been working with you to see you through the complications. I really appreciate your positive attitude despite the disappointments. I had a kidney transplant just over a year ago and have come to realize that the journey isn't necessarily easy but, all things considered, it's definitely worth it. I hope your transplant team can find a way to resolve the complications so that life improves for you. Wishing you all the best! Hugs.