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Discussionwhat are best external devices (e.g. smart watch) to monitor HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 31 9:55am | Replies (3)Comment receiving replies
Replies to "Thanks. Sounds good. It's so important to be diagnosed early on in the game (of life)..."
Have you been put on Camzyos for your HCM?
Is it obstructive HCM?
I was put on camzyos almost 8 weeks ago and noticed a difference in the first week!
Im now doing things i have not been able to do in years!
My bike rides had gottent to a point that either i could not go or after my bike rides it was several days of recovering!
Im now riding every other day. So far for Jan i have ridden 17 rides for 136 miles
I havent rode thise miles in over 4 years!
I went for a brisk 2 mile walk yesterday that had a 1/2 mile 6% climb and walked upbit like it was nothing!
Before the slightest incline would make my jaws hurt, my chest was tight and breathing was restricted and labored, and thighs would get extremely tight!
I had told my doctor for years i felt blood was not moving thru my body, i always told them it felt like i have a whole in my heart!
Thanks to Mayo and thanks to Camzyos i have my life back
Hope this helps