The Caregivers' Guilt Dumpster - Open for business

Posted by Scott, Volunteer Mentor @IndianaScott, Sep 4, 2016

I titled this discussion with tongue-in-cheek, but only part way. As this caregivers discussion group has begun I have been struck by the number of times the word 'guilt' is used by us caregivers. It is unfortunate, understandable, unnecessary, and, to me, more often than not, unwarranted!

I believe 99% of our guilt is so unwarranted we caregivers need a place to get rid of it. This gave me an idea....

So here is our Caregivers' Guilt Dumpster! Feel free to check in, and make a deposit anytime you want! The dumpster is big, it has no weight limit, 24/7/365 availability (since we as caregivers often live on that same 24/7/365 schedule), no fees, and the lid is now open! 🙂

I'll start.

More often than not, I believe a person is thrust into a caregiving role. It seems to just happen and we answer the call for some variety of reasons. Those who adopt the nickname of 'caregiver' obviously have accepted our call.

As we each know, caregiving comes with no employee handbook, no job description, no timesheet to clock in and out, and an awfully slim benefits package. I likened my initial feelings as a caregiver to those I had the first time I jumped into the deep end of a swimming pool. In over my head and trying my best to just not drown.

In the 14 years I was my wife's primary caregiver I had loads and loads of feelings of guilt. Heck, sometimes I would feel guilt before I even did something because I was unsure of my ability to do what she needed. But, thankfully, we always seemed to manage. Not always the smoothest of managing, but we did get to say 'mission accomplished'.

Yes, the 'mission' at hand would get accomplished and sometimes I would be repaid with a smile and sometimes with a snarl. While the 'mission' got done -- however my feelings of guilt often did not end. To fight the guilt, I finally began to use a mantra/image to help me through the guilt. Before I would start, I'd close my eyes for a brief moment. When I would reopen them I would say to myself "Well, Scott, no one appeared in this room to take my place for this task, so all I can do is give it my best."

This did help. I still had some, but at least less, of the guilt. My reality now is too much of those feelings of guilt still nag at me and hang on my shoulders like a weight. So I leave it here. Now. Today. In the guilt dumpster!

Feel free to have at it!

Peace and strength to all caregivers!

Interested in more discussions like this? Go to the Caregivers Support Group.

The Airplane Trip. We're snowbirds, so after Christmas we return to Las Vegas. There is no reason to pack, but she spends hours building a carry on that weighs a ton. Then there is the purse that weighs 20-pounds (full of coins). Even though I have us both signed up for 'known traveler' and 'pre-check' she gets to the TSA facial recognition and shows her 2-year expired drivers license. "Do you have a something with a photo ID?" I know this will be a problem. I whisper in the TSA lady's ear, "She has Alzheimer's and this will take time." We go through two supervisors and then 20-minutes going through EVERYTHING in bag and purse. I patiently wait on the other side of the 'ropes. When she exits I say, "We're going to clean out that purse." The next day, when she getting ready for the day, I clean out all the stuff, coins, old pieces of paper with written 'reminders,' and junk. I find the essential IDs, passport, current photo drivers license, insurance cards.....and get the purse down to 2-pounds. I hand the purse back to her and say, "Here's your purse, I got rid of the coins and old papers, and organized the important stuff." She picked it up and noticed it was much lighter. She said, "Thank you!." Caregiver lesson learned: 'Just do it, don't ask to do it.'

REPLY
@bbams

Guilt dump! I've been frustrated lately since my husband was so down and out and not helping himself. I will do anything for him but for the first time in a while seeing him able, or what seemed like able, to help and he wasn't. And by help I mean chores such as: hose down patio, empty dishwasher, etc...easy things. So guilt 1: not just letting it go and let him sulk on the couch all day because he certainly deserves to. And also guilt because it was more my stubborness about the principal, not the actual chores. And my worry about his emotional stability also important.

Guilt 2: even though he seemed somewhat ok he wasn't. All the tumors had grown so big that if this chemo treatment doesn't work (started today and I'm sitting in the room now)then... I can't even finish this sentence because it's too freaking hard to fathom. SO guilt 2: he's been worse than ever and I'm annoyed that he's not helping around the house!!!! AHHH!!!! What was I thinking?!?!

Guilt 3: 9 months and 6 days ago we were planning a huge wedding on a boat, with an awesome band, 200+ people, I had purchased my beautiful gown,etc. We cancelled when he was diagnosed with cancer and we got married in our living room with a few friends in March and it was perfect. other than not being able to wear my gorgeous ball gown haha, I've never regretted our decision to cancel it nor have I been sad about cancelling it. Well... That big wedding was supposed to be tomorrow. And I feel INCREDIBLY guilty because for some reason I'm thinking about that... and I'm a little disappointed.... And we are in an extremely scary situation now and I'm facing losing him yet I'm thinking about a cancelled party!? What!!?? Guilt. Ugh.

Venting about guilt complete 🙂 Good idea @IndianaScott !!!

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You don't deserve guilt. You deserve a halo.

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