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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (115)
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@nohrt4me

Mine were in 800 and went to 600s in a year if HU 500 mg/day. Dose was upped to an extra cap 3 × per week and now in the 400s, where it has stayed for past 5 years. Results can be slow for some of us. Don't lose heart.

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Replies to "Mine were in 800 and went to 600s in a year if HU 500 mg/day. Dose..."
1pearl | @1pearl | 2 days ago

Hi again nohrt4me,
I like the idea idea of starting slowly if it is found I truly do have ET.
I have one question for you to please explain to me. I know you have had ET for a while and you also mentioned that your dad had it. My question is how your Dad and you both had it since my O/H said it was not genetic but rather and acquired gene mutation. I still do not have any of the gene mutations identified in my case nor any symptoms and now I have been diagnosed with White Coat syndrome and not hypertension which I already knew.
I do believe my O/H does treat on platelet number alone. I wonder why my platelets are decreasing on there own with no treatment. She did not answer that.
Thanks so much for listening and explaining so much to me.

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