Proactive Post-Op Shopping List

Posted by survivor5280 @survivor5280, Dec 15, 2024

This is a topic I never imagined in my life I would write! I'm being prudent and getting prepared for post-op. Hope for the best, but plan for the worst, right?

I purchased some breakaway sweat pants and sweat shorts for the "catheter week" after reading suggestions for that.

I've read there are some "catheter accessories" that someone had recommended but I don't remember what that was or where I read it - I think it was just stuff to help keep the bag/tube from pulling or twisting or perhaps an accessory to make the leg bag more comfortable. Any suggestions on this?

What diapers and pads have been successful? I think I read to buy multiple brands and sizes just to be safe. My hope is that all the training and therapy beforehand will make this not needed but, again, plan for the worst.

And, this is strange to ask about, in case I need a penis pump, what are good ones that people have had success with? Do the higher priced sex shop ones work for this or is there a specific type needed? I looked at some "medical" versions that got up to nearly $1,000, which seems really pricey for such a device.

Any other suggestions are also welcomed.

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Profile picture for survivor5280 @survivor5280

I mostly work from home and will be totally working from home during that time, I'll be in sweats all day, I figure the breakaway would just make it simpler and less likely to snag - or at least from what I have read. $30 was a cheap insurance policy.

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I wore baggy sweats and strapped the catheter to my ankle just above the cuff on the sweats. I used Depends and then switched to pads at about 30 days post op. Also used bed pads, just in case, for about 90 days.

GOOD LUCK!

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Proactive is great planning. Just don't burden yourself with 'over active' planning. Post op is a learning curve for us all. I advised my neighbor friend to get one bag of men's diapers and one of large-ish pads. Then next purchase adjust to what may work as well or better.
For the catheter, I just a simple strap or even string in one of the bag's top holes used for hanging on a hospital stand. The other end I'll attach something I can trap under my pants belt. That way the bag hangs free and doesn't follow my leg when I walk. That way I avoid the bag pulling on the hose with every step I take.

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Profile picture for grandpun @grandpun

Proactive is great planning. Just don't burden yourself with 'over active' planning. Post op is a learning curve for us all. I advised my neighbor friend to get one bag of men's diapers and one of large-ish pads. Then next purchase adjust to what may work as well or better.
For the catheter, I just a simple strap or even string in one of the bag's top holes used for hanging on a hospital stand. The other end I'll attach something I can trap under my pants belt. That way the bag hangs free and doesn't follow my leg when I walk. That way I avoid the bag pulling on the hose with every step I take.

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And keep a few of the pads and pull up’s in your car. And your pocket when going out. I went through 2-3 pads just going to grocery store and a meal out. And I kept a pair of sweat pants or jeans in truck because I had a few bladder leaks/blowouts when I was out. Might need few extra towels on floor after shower. Urine just runs out until u get some control. My Dr said do nothing for 3 months so neighbors mowed for me . Hope it goes well for you, I never got bladder control..

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Profile picture for lee61 @lee61

And keep a few of the pads and pull up’s in your car. And your pocket when going out. I went through 2-3 pads just going to grocery store and a meal out. And I kept a pair of sweat pants or jeans in truck because I had a few bladder leaks/blowouts when I was out. Might need few extra towels on floor after shower. Urine just runs out until u get some control. My Dr said do nothing for 3 months so neighbors mowed for me . Hope it goes well for you, I never got bladder control..

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Thank you, it's excellent advice. I keep emergency supplies in my vehicles, such as first aid and emergency water and food - even a retired pair of running shoes just in case I'm wearing the wrong shoes and end up need to do some serious walking - it stands to reason that this planning should include extra continence supplies for just in case.

I believe I have a year of firsts, the first time I lift something heavy or am not within easy access of a toilet, I like the idea of throwing a pad or two in a pocket just in case, excellent advice.

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Bring a pillow for the ride home to put between you and the seatbelt to protect the incisions and rubbing of the seatbelt. Also, regarding penis pumps, I don't know a whole lot since my docs didn't think it helped much, but I tried it and didn't like it, nor did it work. I got mine for a hundred or so but under two hundred.

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Penis pump $1000? A hand is free with a prescription of Tadalafil with a discount card around $25. The idea is to get blood flow into the penis which both of the aforementioned will accomplish. I would suggest pelvic muscle work for a few weeks before trying it out, otherwise the potential to shoot pee is pretty high. If I sit on something that has a sharp edge or a rock in the woods the bladder neck tends to squirt like bending a whipped cream nozzle. We also need a sense of humor as we learn our new selves. For me it was a week with a cath. I used Depends for a couple of weeks daily and for a month nightly. I then switched to pads for 4 months and still sleep with a pad under me 2 years later for the occasional drip. Caffeine creates urgency and early on can be a problem. Don't over think it. Best of luck on your recovery and journey.

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Profile picture for lee61 @lee61

And keep a few of the pads and pull up’s in your car. And your pocket when going out. I went through 2-3 pads just going to grocery store and a meal out. And I kept a pair of sweat pants or jeans in truck because I had a few bladder leaks/blowouts when I was out. Might need few extra towels on floor after shower. Urine just runs out until u get some control. My Dr said do nothing for 3 months so neighbors mowed for me . Hope it goes well for you, I never got bladder control..

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Have you tried an external catheter? I tried them a couple of times I went on long drives and thought it was great. No more worries.

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Profile picture for narus @narus

Have you tried an external catheter? I tried them a couple of times I went on long drives and thought it was great. No more worries.

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No, but I normally have my RV behind me so hopefully it won't be too much of an issue. I also have a wife who has to pee every 13 1/2 seconds, generally, on a road trip - so even if I pee on her schedule I hope I'll be OK 😂

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Profile picture for survivor5280 @survivor5280

I'm now T minus 18 days and find myself getting more stressed and anxious - not for the surgery but for life afterwards. Despite all my preparations - the things that I can control that impact the outcome, like pelvic floor and general health & well being - I feel like I'm woefully unprepared.

It's funny I feel this way because every doctor/therapist/friend/family says that I'm doing far more in advance than the vast majority of guys do (my friends and family say "yea, that's typical you") but it never feels like enough. My pelvic floor therapist said in all her time doing this that only two other guys saw her before surgery to get ready and she wishes more would. I've now seen her 5 times and while she really digs into weird places I have to admit that the deep butt work is actually quite relaxing mostly, I find myself looking forward to it lol.

I think I've done "the" things. I'm pretty sure I can bend carbon steel with my pelvic floor, dropped 20 pounds, have been careful about consuming anything unhealthy and know I've done the things, but still.

I've started the 5mg Tadalafil daily to get it built up in my system along with 3g of L Citrulline daily (penile therapist said it can help but certainly doesn't hurt), which are a literal and figurative big pill to swallow for a guy who's never had even the slightest issue in that department, but whatever. It has an interesting side effect, that "morning wood" now keeps me awake once it starts and it keeps ebbing and flowing - not the one or two normal, but 10-15 times and I attribute this to taking an ED pill when everything is quite healthy down there already. Other than the normal use for it, I've thought of using it as a hammer and working on building a new cabinet or something.

I'm slightly less worried about incontinence because I have focused quite a lot on being prepared to use my pelvic floor since I'll lose that primary sphincter, but still worry about ED. I know half the nerves will go, I get really anxious when I consider waking up from surgery and being told the other half had to be taken.

I also worry about adjusting to the new continence control, like how I'll deal with spicy foods or alcohol or heavy lifting. With loss there is the "year of firsts" where you have to experience something for the first time since loss, I expect continence will be similar that I won't know how to deal with heavy lifting (etc) until I do it the first time.

I've saved some things to cheer me up after. I haven't had any of the Christmas baking my wife did because I'm laser focused on healthy habits right now, but I look forward to finally trying them after surgery. It's not much, but it's really the only thing to look forward to right now.

That's all, just a bit of a journal entry today.

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@survivor5280 I think we're on similar trajectories...but my surgery is like 90 days away. Hope your surgery went well and recovery isn't too difficult. I'm also an over-prepper...think it gives a small sense of control in a situation you have no control over.

Any different advice now that you've had the surgery?

Also, had not heard of taking 3g of L Citrulline daily. Was that your own doing or did the penile therapist suggest that?

Thanks so much!

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Profile picture for fritzo @fritzo

@survivor5280 I think we're on similar trajectories...but my surgery is like 90 days away. Hope your surgery went well and recovery isn't too difficult. I'm also an over-prepper...think it gives a small sense of control in a situation you have no control over.

Any different advice now that you've had the surgery?

Also, had not heard of taking 3g of L Citrulline daily. Was that your own doing or did the penile therapist suggest that?

Thanks so much!

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@fritzo With the exception of an incision issue in the beginning that opened up and I had to pack until it closed, and one suture that took a long, itch, time to work its way out - it's been fine. My advice isn't any different, precisely the same, as my results were fantastic!

The urologist (penile therapist who I only saw pre-op one time) recommended it.

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