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Grover's Disease tied to Shinglix Vaccine

Posted by gardeningjunkie @gardeningjunkie, Jan 14, 2020

A member of the Grover's Disease, GD, discussion questioned if he could have acquired GD from his Shingles Vaccine as he began having GD symptoms after the shot. It made me realize my last outbreak began 3 days after my Shinglix vaccine shot. I read nothing about this on the literature for this shot I studied on the internet. I saw my dermatologist yesterday to ask if there was a tie in and he said, "Yes, 100% this vaccine can initiate or cause GD symptoms to return". For those not familiar with GD look it up. It is an intensely itching and painful torso rash that comes and goes for life. The collagen in the skin is changed. I can't believe Shingles is any more miserable. I so wished I had checked with my dermatologist first. Presently a prescription is not needed for this shot and can be given at any pharmacy which has it in stock. I also did not read anything on all the pages I signed warning me that it could trigger this disease before I got this shot at Sam's Club. My dermatologist is Jonathan Bellew, DO of the Mohave Skin and Cancer Center in Arizona and Nevada.

Interested in more discussions like this? Go to the Skin Health Support Group.

itchyrich | @itchyrich | Jan 20 1:05am
In reply to @itchyrich "There are different triggers for different people. Sometimes it comes and goes all by itself. That's..." + (show)
@itchyrich

There are different triggers for different people. Sometimes it comes and goes all by itself. That's the "transient" part. I've had the rash since 1992 (confirmed by biopsy) but it didn't itch until 2007 and it went on for 18 months until a derm prescribed Gabapentin (300 mg every night) and it went away immediately and stayed away for 13 years although I still had some rash. It came back in 2021 and I still have the itch. I had about 12 weeks of NB UVB (blue) last summer and I think it helped a little. I use Eucerin Itch Relief after every shower and take Hydroxyzine every night to get some sleep. I recommend also signing up for the Facebook forum for Grover's.

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PS: I'm gonna get the new shingles vaccine as I had shingles last summer and don't want it again. I also get every Covid shot that comes along as I've never noticed any correlation between vaccines and flare ups.

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alju | @alju | 5 days ago
In reply to @itchyrich "There are different triggers for different people. Sometimes it comes and goes all by itself. That's..." + (show)
@itchyrich

There are different triggers for different people. Sometimes it comes and goes all by itself. That's the "transient" part. I've had the rash since 1992 (confirmed by biopsy) but it didn't itch until 2007 and it went on for 18 months until a derm prescribed Gabapentin (300 mg every night) and it went away immediately and stayed away for 13 years although I still had some rash. It came back in 2021 and I still have the itch. I had about 12 weeks of NB UVB (blue) last summer and I think it helped a little. I use Eucerin Itch Relief after every shower and take Hydroxyzine every night to get some sleep. I recommend also signing up for the Facebook forum for Grover's.

Jump to this post

Did you consider that it's return may have been connected with your Covid vaccines? Do you remember date you had the shots? I got my first Covid vaccines in 3/2021. After reading these posts on triggers for GD, I am reluctant to have ANY vaccine or injection. I was supposed to have a scan that required iodine contrast , with a common side effect of rash and itching, so I cancelled it. I am now in limbo wondering what to do.

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1 reply
itchyrich | @itchyrich | 4 days ago
In reply to @alju "Did you consider that it's return may have been connected with your Covid vaccines? Do you..." + (show)
@alju

Did you consider that it's return may have been connected with your Covid vaccines? Do you remember date you had the shots? I got my first Covid vaccines in 3/2021. After reading these posts on triggers for GD, I am reluctant to have ANY vaccine or injection. I was supposed to have a scan that required iodine contrast , with a common side effect of rash and itching, so I cancelled it. I am now in limbo wondering what to do.

Jump to this post

I got my first Covid vaccine in Feb 21. Didn't get my itchy return until around Sept 21. It's always possible there is a connection but I tend to doubt it. I don't know what's in flu shots but I've been getting them for over 40 years and while I've had Grover's rash since 1992 , I didn't itch until 2007/2008 the first time.

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1 reply
alju | @alju | 4 days ago
In reply to @rickbru "I contracted GD in 2008 after having received a flu shot with a flu vaccine which..." + (show)
@rickbru

I contracted GD in 2008 after having received a flu shot with a flu vaccine which contained a mercury compound (Thimerosal) as a preservative. The GD lasted two years and has not recurred since. I have since studiously avoided all vaccines containing Thimerosal. The old shingles vaccine (Zostavax) is OK but apparently the new one (Shinglix) contains Thimerosal or some other agent which triggers GD.

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I tried to find out if the flu shot I had in November had this preservative in it, since my rash seems to have become more wide spread on my back and shoulders recently but I was told it didn't have a preservative which I think must be incorrect. I'll try to some info next week when I return to that office for an appointment. They have to have records with the brand name and description of the vaccine used.

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alju | @alju | 4 days ago
In reply to @itchyrich "I got my first Covid vaccine in Feb 21. Didn't get my itchy return until around..." + (show)
@itchyrich

I got my first Covid vaccine in Feb 21. Didn't get my itchy return until around Sept 21. It's always possible there is a connection but I tend to doubt it. I don't know what's in flu shots but I've been getting them for over 40 years and while I've had Grover's rash since 1992 , I didn't itch until 2007/2008 the first time.

Jump to this post

Seven months is a long time for any connection, I agree.

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