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Central Sleep Apnea, Anyone try supplemental O2 via nasal canula
I believe I have Central Sleep Apnea. Had 3 sleep studies in a clinic and attempts to control with CPAP, BIPAP, etc no really working.
They keep assuming its Obstructive which is obviously is not.
I've been using the Wellue O2 ring to measure blood O2 for over a year and it goes into a cycle of dropping from 98 to 88 and then back up consistently every 40-50 seconds and do this for several minutes. At times it is steady. Corollation with BiPap treatment shows it correlates to when flow is steady and flow is irratic.
Also, flow is nice and steady when NO motion is recorded on O2 ring.
I've been asking for them to try supplemental O2 but they resist and keep trying things that don't work. Even just did a WatchPat One while using Bipap and ended up with 40 events per hour. I think they are looking for RLS or other leg issues.
Has anyone tried or had success with just a little O2 ?
Internet seems to imply that it works for some people.
I actually did my own short term attempt using a D tank of O2 which lasted only 2 hours but results looked good. How do I get doctors to try it. What is the mechanism for Central Sleep Apnea that would lead to some solution. It seems like the implant that detects no breathing in a time period and then stimulate the diaphragm to contract would be the only logical solution. Remede is the device.
Anybody have one or know anyone who had one?
I get 20-30 events an hour with or without treatment. With the BIPAP the O2 levels do average higher being in the 90-100 percent more then without which is usually in the 85- 95 percent. I've seen it go down to 72. There is no gasping. Gaps in breathing can go to 30 seconds.
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That's great real life data. I think our situations are somewhat similar. I also do not have full confidence in my sleep doctor. I think he has jumped to conclusions that I have many hypopnea due to obstructive hence his recommendation of bi-level. He discounts the central apnea aspect, the loop gain and Cheyenne Stokes.
I will do the bi-level trial for the data but with great skepticism . I also had pulmonary function test that showed excellent function.
I have no insurance. Canadian (BC) health care is good but will not cover machines. Holter test, stress test and echocardiogram all show no heart problems so my determination to improve disturbed sleep is aimed to keep it that way.
Thanks again for your wisdom.
Regards
John Gates
johnici
if you have to pay for a machine. spend the money and get an ASV/
Its Crazy what it does but it stopped all my problems. I used a bipap for almost 6 months. Events were still between 20-30 and hour.
first day on asv it is under 5 and stays.