Fungal culture

Posted by maliko @maliko, 3 days ago

I recently had a bronchoscopy with bronchoalveolar lavage to get lung fluid to test for mac. Along with acid fast culture for mac , a fungal culture is also in progress. My question is how long does it take to process results for fungal culture? Also, what fungal species are usually tested in fungal culture? And lastly, if fungus is found, are they usually treated? Is the treatment lenghty like mac? Thank you

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@irene5

Aspergillosis is easier to treat and cure than MAC. MAC and Aspergillosis are treated with different meds. I have never heard of having MAC and aspergillosis at the same time. Irene5

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Irene 5, Hi.
This is a quick reply.
I googled: Can you have a MAC infection and Aspergillosis at the same time.?
It appears from what came up it is something that can happen. What do you think?
Barbara

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My fungal culture returns from NJH after a month

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You are correct. But aspergillosis which I had after having years of MAC is a fungus. I had pseudomonas last year after having had a bad bout with RSV. Aspergillosis is usually treated with Vfend or the pricier Cresemba. Pseudomonas was treated for me with Levoquin long term. Irene5

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@blm1007blm1007

Irene 5, Hi.
This is a quick reply.
I googled: Can you have a MAC infection and Aspergillosis at the same time.?
It appears from what came up it is something that can happen. What do you think?
Barbara

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I have learned in life that anything is possible. Generally I have found one follows the other. - just replacing one gift with another. But aspergillosis is easier to treat than MAC. Reminds me of the book “TheMitten!” Move over I’m coming in! Irene5

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@blm1007blm1007

Declined clofazimine and you did just fine. Again, we also have to be a big part of the decision making for ourselves.

Sorry I again read the other post and now have this question.

Did you mean they said they wouldn't treat the apergillus but yes they will treat the MAC and just with the antibiotics for treating MAC...... it took care of both MAC and apergillus?
Barbara

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Barbara, I don't know, and I rather doubt, that the MAC meds treated the aspergillus infection. Maybe the doctors didn't treat it because it wasn't very severe or because they wanted to treat the MAC first or something else, who knows? I see my local ID doc in a month and I'll ask him to clarify.

I don't know how common it is to have the fungal and the MAC infection concurrently, but I certainly did.

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I am not on any medications for MAI and have untreated "apiotrichum mycotoxinivorans" yeast/fungus. My doctor at NJH and I had decided not to treat, as there didn't seem to be a major progression in late July of last year.

I have a 6 month check up in 2 weeks at NJH: CT scan, spirometry, sputum culture and the doctor consultation. My most recent sputum test (January 8) shows "abnormal" fungus culture and came back in a little over a week after NJH received the sample, but it took about 2 more weeks for the lab to report the kind of fungus it is (consistently the same), which has been a typical time frame over the past year.

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@coffcoff

Barbara, I don't know, and I rather doubt, that the MAC meds treated the aspergillus infection. Maybe the doctors didn't treat it because it wasn't very severe or because they wanted to treat the MAC first or something else, who knows? I see my local ID doc in a month and I'll ask him to clarify.

I don't know how common it is to have the fungal and the MAC infection concurrently, but I certainly did.

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I too often failed to ask the doctors, why this, why that etc. , at the time they are saying what they want me to do or why they said what they said. Hope I get better 'on my feet' with that aspect of working with doctors now that for the first time in my life, these last couple of years, I have had to visit and converse with doctors, the professionals who are not necessarily 'teachers,' with my first chronic health problem.
Barbara

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@coffcoff

I've only been on the Abx once but for 18 months. After 6 months on the Big 3 I was still positive for MAI so my doctor took me off rifampin and replaced it with Arikayce. He also wanted me on clofazimine but I declined. I converted to negative after 2 months and then of course took the 3 of them for another year. Negative now and working really hard to keep it that way!

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I would love to hear what you are doing to "keep it that way" or negative.
Thank you,
Aida

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@paxmundi

I would love to hear what you are doing to "keep it that way" or negative.
Thank you,
Aida

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In answer to Aida's question of how I'm working to keep from getting MAC again:
1) diligent airway clearance, with 7% saline twice a day, using an Afflovest once a day
2) purifying my drinking water in a LifeStraw pitcher
3) wearing an N95 mask when outside gardening
4) taking short showers with the bathroom vent on with shower door and bathroom doors open
5) using GERD precautions (since I have GERD) like sleeping with my head elevated 30 degrees and not eating or drinking for 3 hours before bed
6) minimizing stress , exercising and eating well to keep my immune system strong

I don't know what else I can do, because NTM is everywhere in the environment and I'll most likely find it in my lungs again, but we can only do what we can do. God bless!

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@coffcoff

In answer to Aida's question of how I'm working to keep from getting MAC again:
1) diligent airway clearance, with 7% saline twice a day, using an Afflovest once a day
2) purifying my drinking water in a LifeStraw pitcher
3) wearing an N95 mask when outside gardening
4) taking short showers with the bathroom vent on with shower door and bathroom doors open
5) using GERD precautions (since I have GERD) like sleeping with my head elevated 30 degrees and not eating or drinking for 3 hours before bed
6) minimizing stress , exercising and eating well to keep my immune system strong

I don't know what else I can do, because NTM is everywhere in the environment and I'll most likely find it in my lungs again, but we can only do what we can do. God bless!

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You're on the right track - I have had very good luck using my precautions and being extremely "lung aware" - I made an exacerbation plan with my pulmonologist, and have managed to stay free of all but minor exacerbations (except when I got Covid in September) for over 5 years, including through 2 surgeries & recoveries. When I do feel a respiratory illness threatening I jump right to my increased clearance protocol, load up on clean protein & vitamin C rich foods and try to rest a little extra.

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