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They say I have CMML but bone marrow not there: What to do?

Posted by lmoser325 @lmoser325, Jan 23 3:10am

First they were treating me for Cmml . But the treatment was to strong they said because my numbers drop. They Took me off of everything my numbers are going up. My white blood cell was .06 now they have gone back to 4.1. The other problem is platelet. They’re down to 8 to 15 they give me some every week and also blood. I need to know what we should do.

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Mentor
Lori, Volunteer Mentor | @loribmt | Jan 23 11:26am

Welcome to Connect, @lmoser325 Chronic Myelomonocytic Leukemia (CMML) is a type of leukemia disrupts the formation and activity of blood cells in the bone marrow. There are different levels of this disease which can determine the type of treatment plan going forward. I’m providing a link to an article that does a good job of explaining this blood disease.

From healthline.com
https://www.healthline.com/health/leukemia/chronic-myelomonocytic-leukemia#symptoms
If you don’t mind sharing, would you mind telling me how you were diagnosed. Did you have a bone marrow biopsy?
It isn’t unusual with chemotherapy for all blood numbers to drop midway during a chemo cycle and then they climb again as the blood cells are reproduced. The goal with chemo is to knock down the cancer cells. From what you’re telling me you started chemotherapy or was it another drug?

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lmoser325 | @lmoser325 | Jan 24 10:02pm
In reply to @loribmt "Welcome to Connect, @lmoser325 Chronic Myelomonocytic Leukemia (CMML) is a type of leukemia disrupts the formation..." + (show)
@loribmt

Welcome to Connect, @lmoser325 Chronic Myelomonocytic Leukemia (CMML) is a type of leukemia disrupts the formation and activity of blood cells in the bone marrow. There are different levels of this disease which can determine the type of treatment plan going forward. I’m providing a link to an article that does a good job of explaining this blood disease.

From healthline.com
https://www.healthline.com/health/leukemia/chronic-myelomonocytic-leukemia#symptoms
If you don’t mind sharing, would you mind telling me how you were diagnosed. Did you have a bone marrow biopsy?
It isn’t unusual with chemotherapy for all blood numbers to drop midway during a chemo cycle and then they climb again as the blood cells are reproduced. The goal with chemo is to knock down the cancer cells. From what you’re telling me you started chemotherapy or was it another drug?

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Yes it was then they move treatment from 4 weeks to 8 weeks that when I started having problems

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