Which AC system is best for Bronchiectasis & MAC?

Posted by jill6063 @jill6063, Dec 30, 2024

Hi friends -
I am hoping someone can share some research findings or shed some light on the question as to which is better for someone struggling with Bronchiectasis & MAC. Presuming cleaning methods are followed appropriately, would it be safer to use AC window units, or to invest in a central AC system? Many thanks for advice or guidance!
Kind regards,
Jill

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@scoop

Mouth-taping with 3M micropore tape to avoid dry mouth in morning! Read Jim Nestor's book, Breath. You'll be amazed! I simply cannot sleep without my mouth taped. [Yes, all my doctors look at me weirdly, except my dentist!]

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I wrote my reply and sent it and then found your reply.
Wow, scoop....There we have it. Three of us. Wonder how many others find/found themselves sleeping with their mouth open. .
Yes, now that I think of it one of the reasons I felt concerned about taping the mouth closed is the advice I was given by a YOUNG Nurse Practitioner who told me to stop doing it. She was in charge of doing or not doing the testing for acid reflux. I wanted to have the test performed because of needing to find out what was going on with me with the constant mucus needing to be cleared out of my throat. She refused to do the acid reflux test. Go figure. So onto NJH I went shortly after that.
Barbara

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@scoop

Mouth-taping with 3M micropore tape to avoid dry mouth in morning! Read Jim Nestor's book, Breath. You'll be amazed! I simply cannot sleep without my mouth taped. [Yes, all my doctors look at me weirdly, except my dentist!]

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So not to be a Debbie downer but every medical person I have heard/seen comment on mouth taping thinks it is a bad idea, the majority opine that it is downright dangerous, particularly for anyone with lung disease. If the doctor of anyone in this group says something different I would be interested in hearing that. I know many love the Breath book but it reads like pseudoscience to me and I would be cautious in evaluating its content. I have read comments by medical professionals whose opinion is that the author misquotes or improperly summarizes the research cited. If mouth taping is working for you, make sure you discuss the practice with your medical team. I am not saying Breath or any other self-help resources cannot be helpful. But be sure to review the information you find of interest with your medical team to make sure you are all on the same page, or at the very least that you are fully informed. My dentist agrees mouth breathing is not a great practice but recommended expanding my palate to improve my nose breathing which at my age would be really involved and seemed kinda crazy when he made the recommendation (which was before my BE/MAC diagnosis).

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@blm1007blm1007

Yes I plan, planned, to discuss with my heating/air technician. He probably has one in his home knowing how both he and his wife pay attention to things such as this.
Thanks.
Barbara

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This is the one my guy is installing in case it helps!

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@jill6063

This is the one my guy is installing in case it helps!

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Thanks Jill.

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@bayarea58

So not to be a Debbie downer but every medical person I have heard/seen comment on mouth taping thinks it is a bad idea, the majority opine that it is downright dangerous, particularly for anyone with lung disease. If the doctor of anyone in this group says something different I would be interested in hearing that. I know many love the Breath book but it reads like pseudoscience to me and I would be cautious in evaluating its content. I have read comments by medical professionals whose opinion is that the author misquotes or improperly summarizes the research cited. If mouth taping is working for you, make sure you discuss the practice with your medical team. I am not saying Breath or any other self-help resources cannot be helpful. But be sure to review the information you find of interest with your medical team to make sure you are all on the same page, or at the very least that you are fully informed. My dentist agrees mouth breathing is not a great practice but recommended expanding my palate to improve my nose breathing which at my age would be really involved and seemed kinda crazy when he made the recommendation (which was before my BE/MAC diagnosis).

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@bayarea58 and @scoop
A thought came to me in that the Nurse Practitioner did not give me a reason why I should not to tape my mouth to keep it closed during sleep.
If I am reading it correctly you also, @bayarea, may not have been given a reason why the doctors said not to tape the mouth closed.
I wish I had asked "Why not, what harm does it do".
We breathe through our nose and the nose provides a filter. However as with other things it doesn't filter out everything.
The mouth has nothing to filter the air breathed in.
So yes, it would be good, nice, to understand, in general, why they say not to use the micropore tape to keep our mouth closed.
Barbara

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@blm1007blm1007

@bayarea58 and @scoop
A thought came to me in that the Nurse Practitioner did not give me a reason why I should not to tape my mouth to keep it closed during sleep.
If I am reading it correctly you also, @bayarea, may not have been given a reason why the doctors said not to tape the mouth closed.
I wish I had asked "Why not, what harm does it do".
We breathe through our nose and the nose provides a filter. However as with other things it doesn't filter out everything.
The mouth has nothing to filter the air breathed in.
So yes, it would be good, nice, to understand, in general, why they say not to use the micropore tape to keep our mouth closed.
Barbara

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My recollection is that there is little to no research on mouth taping, and the patient populations that are specifically cautioned against it are those with heart or lung disease, gerd, sleep apnea. Low oxygen levels was one stated concern, I don’t recall the others off the top of my head but I do recall googling it and finding enough information to give me pause. I did read that sleeping position may matter, with sleeping on back or stomach viewed as possibly contributing to the mouth breathing, while sleeping on side was seen as potentially helpful. I try sleeping on side, for a variety of reasons, but always end up flat on my back. In general the medical consensus seems to be that one should find the reason they are mouth breathing and address the root cause. Again my dentist told me that my mouth breathing has to do with the structure of my sinuses which makes it harder to breath comfortably through my nose. His fix was to refer me to a specialist to crack open and widen my palate, among other things. It seemed kinda crazy at the time, but again that was before all the BE/MAC started and now the value of improving my nose breathing seems higher to me. I definitely need to get a 2nd (maybe 3rd) opinion.

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@blm1007blm1007

@bayarea58 and @scoop
A thought came to me in that the Nurse Practitioner did not give me a reason why I should not to tape my mouth to keep it closed during sleep.
If I am reading it correctly you also, @bayarea, may not have been given a reason why the doctors said not to tape the mouth closed.
I wish I had asked "Why not, what harm does it do".
We breathe through our nose and the nose provides a filter. However as with other things it doesn't filter out everything.
The mouth has nothing to filter the air breathed in.
So yes, it would be good, nice, to understand, in general, why they say not to use the micropore tape to keep our mouth closed.
Barbara

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It's based on the Buteyko Breathing Method and you can read more here. Your results may vary, it has worked well for me. BTW, this article says nothing about mouth taping rather breathing through your nose with closed mouth. Bottom line it's about belly breathing.
https://www.verywellhealth.com/buteyko-breathing-8679885

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@bayarea58

My recollection is that there is little to no research on mouth taping, and the patient populations that are specifically cautioned against it are those with heart or lung disease, gerd, sleep apnea. Low oxygen levels was one stated concern, I don’t recall the others off the top of my head but I do recall googling it and finding enough information to give me pause. I did read that sleeping position may matter, with sleeping on back or stomach viewed as possibly contributing to the mouth breathing, while sleeping on side was seen as potentially helpful. I try sleeping on side, for a variety of reasons, but always end up flat on my back. In general the medical consensus seems to be that one should find the reason they are mouth breathing and address the root cause. Again my dentist told me that my mouth breathing has to do with the structure of my sinuses which makes it harder to breath comfortably through my nose. His fix was to refer me to a specialist to crack open and widen my palate, among other things. It seemed kinda crazy at the time, but again that was before all the BE/MAC started and now the value of improving my nose breathing seems higher to me. I definitely need to get a 2nd (maybe 3rd) opinion.

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Yes, the same thing happens to me. Start out on the wedge pillow on my left side and find I wake up on my back. I don't quite understand the why of it, it's not like I go from left side sleeping to back sleeping and then to right side sleeping through the night. Go figure.
For over ten years I had changed my way of sleeping. I purposely slept on my back and do believe there is a definite connection of my health problems with my sleeping on my the back for so long. My novice unprofessional thought about the whole thing.
Now that I fall asleep, with having changed back to being a side sleeper, left side on the wedge pillow, I don't wake up with the horrible dry mouth I use to have. Wonder if my lungs experienced dryness all that time?????

Who would have ever thought we'd be discussing health problems with people we have never met, as we do here.....and especially on such as the internet. Ha! .....and thank goodness that we can.
Barbara

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@scoop

It's based on the Buteyko Breathing Method and you can read more here. Your results may vary, it has worked well for me. BTW, this article says nothing about mouth taping rather breathing through your nose with closed mouth. Bottom line it's about belly breathing.
https://www.verywellhealth.com/buteyko-breathing-8679885

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Thanks scoop.
I also found this article and information about the Buteyko Breathing Method and thought I'd pass it on.
https://www.bmc.org/podcast-buteyko-breathing-method This is podcast from Boston Medical Center by Hadas Golan, MS CCC-SLP, a speech pathologist.
Googled this also: Can mouth breathing at night cause a problem with carbon dioxide. Talks about carbon dioxide and mouth breathing.
The Buteyko Breathing Method appears to help those with asthma and other problems.
Barbara

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