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Anyone else dealing with Demodex Mites? What helps?
Skin Health | Last Active: 5 days ago | Replies (214)Comment receiving replies
(@matikowskic, your mold theory is appealing to me. I have been exposed to mold in my life. And many years ago had surgery on my left lung- I had walking pneumonia that was resistant to the antibiotics. So- this is definitely something. All the information on the internet says immune-compromised and I have been wracking my brain trying to figure out how I could be. The medical community has been awful. Simply awful. Condescending, disrespectful. It only adds to my frustration and self worth. I am so sick of these F******!!!!! I feel like a rape victim getting re- victimized by the system. I cannot afford doctors, I paid the last dermatologist $215 for her to tell me “that’s a nice story”and that she can explain everything I pointed. She did take a skin test- but it was the wrong kind to test for demodex, they ended up calling me to come back in, but I declined because I can’t afford the results anyway. I need help. When you know….. YOU KNOW. I don’t know what to do, no one believes me. They just write it off and think I’m crazy. Meanwhile, i die a little more everyday I deal with this REAL condition. I can’t work, I don’t touch people, I do not want to be the reason anything like I’m dealing with happens to them. No one understands what I’m dealing with. I’m glad I found you guys. But I still have mites.
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Again, I’m so sorry you are dealing with this but you are not alone!! Take pictures or use tape to get a sample. They can’t deny if they see them. Keep searching for a doctor that cares and is knowledgeable. They will give you oral ivermectin. Don’t waste your money on anything else! Tea tree oil was not helpful. Initially I paid money for scar cream but the hyperpigmentation was from Demodex mites. This was way before I figured out what it actually was. If my dermatologist had known, I wouldn’t have suffered so long and it wouldn’t have ever gotten this bad. So like you, while I was misdiagnosed and ignored the infestation continued to increase and my mental health has suffered. Once you get the ivermectin (or Accutane) it will take weeks if not months to be clear but at least you’ll know you are on the right medication. Again, forget all the other products. My skin is slowly getting improving. The die off causes a reaction so it does get worse before it gets better. The whole thing is so embarrassing and your self esteem takes a hit, that’s for sure. . It has impacted my life and my family. Why do they test dogs for parasites but not humans? Seems so arrogant to think it is only a third world country problem. Regarding mold: My coworker at school had pneumonia in the spring due to mold in her classroom. The school and administrators never shared the info about the mold. If it was in her room, it is everywhere as it is all one heating system! Now she has scarring on her lungs and sees her pulmonologist regularly. The school took no responsibility. I hope you are no longer exposed to mold! I need to get a different job. It is not worth exposing my body any longer and unfortunately OSHA doesn’t take mold seriously enough either so public schools do not have to actually provide clean air as long as they “say” they are cleaning/mitigating. People will continue to have symptoms and diseases and never know that mold is the culprit because environmental considerations and questions are not part of our doctor visits. It seems logical but it’s not. I don’t know why people do not want to admit the harm that mold causes. It can be the catalyst for cancer and so many other things. This is not a third world country problem, mold and parasites live in the U.S. I believe it would cost some people lots of money to admit/fix the problem so it is kept quiet while people continue to suffer. It is infuriating. I hope you find a good doctor!! Hang in there.