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Burning Mouth Syndrome (BMS): Anyone found any relief?

Posted by ristu @ristu, Feb 22, 2019

I have BMS 3 years now. Has anyone had pain, and inflammation relief from GABA capsules, or liquid ? Vitiman B12 ?

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scentsrnotfun | @scentsrnotfun | Jan 8 10:38am
In reply to @desertrat3121 "I've had BMS since August 2024. I believe mine started when my doctor added sertraline to..." + (show)
@desertrat3121

I've had BMS since August 2024. I believe mine started when my doctor added sertraline to my medications. None of the usual medical reasons (vitamin deficiency, dental, etc) are indicated as a cause. I have asked to stop sertraline. She is recommending replacing it with amitryptiline, which also is a treatment for BMS. I have agreed to the change but it has not been ordered yet. I am hopeful that getting rid of the sertraline will start healing the BMS.

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I have dealt with burning mouth syndrome for years with doctors and dentists saying it's no such thing. I also have multiple chemical sensitivities and now I am tasting any fragrance or chemical that I come in contact with. The burning mouth is exacerbated. I am miserable. I have reached out to Mayo Clinic and they say they don't deal with it and the fragrance/chemical is also considered a phantom disease.

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scentsrnotfun | @scentsrnotfun | Jan 8 10:39am
In reply to @desertrat3121 "I've had BMS since August 2024. I believe mine started when my doctor added sertraline to..." + (show)
@desertrat3121

I've had BMS since August 2024. I believe mine started when my doctor added sertraline to my medications. None of the usual medical reasons (vitamin deficiency, dental, etc) are indicated as a cause. I have asked to stop sertraline. She is recommending replacing it with amitryptiline, which also is a treatment for BMS. I have agreed to the change but it has not been ordered yet. I am hopeful that getting rid of the sertraline will start healing the BMS.

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I am on amitriptyline nowand hasn't helped me.

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1 reply
desertrat3121 | @desertrat3121 | Jan 8 11:42pm
In reply to @scentsrnotfun "I am on amitriptyline nowand hasn't helped me." + (show)
@scentsrnotfun

I am on amitriptyline nowand hasn't helped me.

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I am going to start weaning off sertraline and starting amitriptyline tomorrow. I am hopeful.

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1 reply
desertrat3121 | @desertrat3121 | Jan 8 11:52pm
In reply to @scentsrnotfun "I have dealt with burning mouth syndrome for years with doctors and dentists saying it's no..." + (show)
@scentsrnotfun

I have dealt with burning mouth syndrome for years with doctors and dentists saying it's no such thing. I also have multiple chemical sensitivities and now I am tasting any fragrance or chemical that I come in contact with. The burning mouth is exacerbated. I am miserable. I have reached out to Mayo Clinic and they say they don't deal with it and the fragrance/chemical is also considered a phantom disease.

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Are you familiar with synesthesia?
You may be having some level of synesthesia. Sense of smell and taste are neurologically linked, so that is not surprising, but tasting a non-fragrant chemical is unusual.
Synesthesia is not a disease, rather it is an oddity of neurological response.
Good luck!

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kar66 | @kar66 | Jan 21 6:27pm
In reply to @jshdma "I have had BMS (starting as OLP) for many years. Seen top oral pathologists in NYC..." + (show)
@jshdma

I have had BMS (starting as OLP) for many years. Seen top oral pathologists in NYC and Boston (including one who treats BMS). What I
learned is that there is no reasonable treatment for these problems, much less a cure. It seems to be a life sentence.

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Please discuss with your doctor trying klonopin. I struggled horribly with BMS for many years. Started low dose and had fantastic results .

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1 reply
kar66 | @kar66 | Jan 21 6:31pm
In reply to @desertrat3121 "I am going to start weaning off sertraline and starting amitriptyline tomorrow. I am hopeful." + (show)
@desertrat3121

I am going to start weaning off sertraline and starting amitriptyline tomorrow. I am hopeful.

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Have had great success using klonopin .. anti seizure med.

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1 reply
desertrat3121 | @desertrat3121 | Jan 21 10:04pm

Thanks for the information. I've been off sertraline for almost a week. My BMS is still present. I expect it will take awhile if it is going to work.

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badgerfan24 | @badgerfan24 | Jan 21 10:32pm
In reply to @kar66 "Have had great success using klonopin .. anti seizure med." + (show)
@kar66

Have had great success using klonopin .. anti seizure med.

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Just curious if you can share the form (tablet or orally disolvimg) and dosage you use? I’m seeing a doctor Monday to talk about this. Thanks!

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badgerfan24 | @badgerfan24 | Jan 21 10:33pm
In reply to @kar66 "Please discuss with your doctor trying klonopin. I struggled horribly with BMS for many years. Started..." + (show)
@kar66

Please discuss with your doctor trying klonopin. I struggled horribly with BMS for many years. Started low dose and had fantastic results .

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Can you share the format of klonopin you use and a dosage? Thank you!

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catlady76 | @catlady76 | 3 days ago
In reply to @destinnana "Has anyone had any relief from taking Gabapentin? My doctor really wants me to take it." + (show)
@destinnana

Has anyone had any relief from taking Gabapentin? My doctor really wants me to take it.

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No

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