Hi @coni, I moved your thread to this discussion as I think it may help better connect you with some great people to talk to who have gone through similar situations. I'm also tagging @lorimar89 and @annieg in the hopes that they may share some of their experiences with you.
I also wanted to welcome you to Connect, @mdmendel81! Have you also experienced facial paralysis?
Hello @elreid, Sorry that you haven't had any responses to your posts in this older discussion on Ramsay Hunt Syndrome. I thought I would share the following resources in case you haven't already seen them.
Hello @elreid, Sorry that you haven't had any responses to your posts in this older discussion on Ramsay Hunt Syndrome. I thought I would share the following resources in case you haven't already seen them.
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Their experiences and treatment experiences.
Slight swelling. I do facial exercises and suck on a spoon to reduce the swelling.
Hello @elreid, Sorry that you haven't had any responses to your posts in this older discussion on Ramsay Hunt Syndrome. I thought I would share the following resources in case you haven't already seen them.
-- Ramsay Hunt Syndrome Foundation: https://www.ramsayhuntfoundation.org/
-- National Organization for Rare Disorders - Ramsay Hunt Syndrome:
https://rarediseases.org/rare-diseases/ramsay-hunt-syndrome/
I believe @mattey741 is still active in this discussion and hopefully will see your posts and respond.
Thank you John, very much appreciated.
Rgds, Matt.
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1 ReactionThanks John,
The information you have provided has been helpful. I definitely will follow up.
Thanks again
Larry
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1 ReactionYes I've been diagnosed with RHS. Any treatment information would be greatly appreciated.
Larry
@amandajro
How to overcome the constant dizziness from RHS
Yes can anyone suggest any medication to help with the dizziness from rhs