Hello @elreid, Sorry that you haven't had any responses to your posts in this older discussion on Ramsay Hunt Syndrome. I thought I would share the following resources in case you haven't already seen them.

-- Ramsay Hunt Syndrome Foundation: https://www.ramsayhuntfoundation.org/
-- National Organization for Rare Disorders - Ramsay Hunt Syndrome:
https://rarediseases.org/rare-diseases/ramsay-hunt-syndrome/
I believe @mattey741 is still active in this discussion and hopefully will see your posts and respond.