Ramsay Hunt Syndrome

Posted by maudestl @maudestl, Sep 4, 2011

Have you been diagnosed with this syndrome? We are trying to find the best care and better prognosis for my daughter.

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elreid | @elreid | Jan 13 10:54am

In reply to @amandajro "Hello @mattey741 and welcome to Mayo Clinic Connect. You will notice I have moved your post..." + (show)

Their experiences and treatment experiences.

elreid | @elreid | Jan 20 4:46pm

In reply to @aliskahan "Hi @coni, I moved your thread to this discussion as I think it may help better..." + (show)

Slight swelling. I do facial exercises and suck on a spoon to reduce the swelling.

John, Volunteer Mentor | @johnbishop | Jan 20 5:43pm

In reply to @elreid "Slight swelling. I do facial exercises and suck on a spoon to reduce the swelling." + (show)

Hello @elreid, Sorry that you haven't had any responses to your posts in this older discussion on Ramsay Hunt Syndrome. I thought I would share the following resources in case you haven't already seen them.

-- Ramsay Hunt Syndrome Foundation: https://www.ramsayhuntfoundation.org/
-- National Organization for Rare Disorders - Ramsay Hunt Syndrome:
https://rarediseases.org/rare-diseases/ramsay-hunt-syndrome/
I believe @mattey741 is still active in this discussion and hopefully will see your posts and respond.

mattey741 | @mattey741 | Jan 21 12:52am

Thank you John, very much appreciated.
Rgds, Matt.

elreid | @elreid | Jan 23 7:31pm

In reply to @johnbishop "Hello @elreid, Sorry that you haven't had any responses to your posts in this older discussion..." + (show)

Thanks John,
The information you have provided has been helpful. I definitely will follow up.
Thanks again
Larry

elreid | @elreid | Jan 31 7:00pm

Yes I've been diagnosed with RHS. Any treatment information would be greatly appreciated.
Larry

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