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Bladder Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, May 17, 2024

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

deb2024 | @deb2024 | Jan 19 7:22pm
In reply to @nolaughingmatter "Hello, I am a 74 year old female who was recently diagnosed with bladder cancer. It..." + (show)
@nolaughingmatter

Hello, I am a 74 year old female who was recently diagnosed with bladder cancer. It appears I have a very large tumor that is suspicious of urothelial cancer. I will be getting a biopsy soon to confirm this but was suspected in the mri with contrast and cystoscopy. I am very nervous about all this. I would like to hear from others who have been diagnosed with same. Thank you.

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Hi, I can relate to your situation. I’m a 70 year old female & was diagnosed with HG urothelial cancer 2 years ago. The medical field has made great progress in treating this type of cancer. There are some good websites that explain the treatments and I hope you are able to ask your doctors what treatments are available to your particular situation. Be encouraged that this can be difficult to deal with but there will be brighter days ahead. I’ll be thinking of you.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 20 3:54pm
In reply to @nolaughingmatter "Hello, I am a 74 year old female who was recently diagnosed with bladder cancer. It..." + (show)
@nolaughingmatter

Hello, I am a 74 year old female who was recently diagnosed with bladder cancer. It appears I have a very large tumor that is suspicious of urothelial cancer. I will be getting a biopsy soon to confirm this but was suspected in the mri with contrast and cystoscopy. I am very nervous about all this. I would like to hear from others who have been diagnosed with same. Thank you.

Jump to this post

@nolaughingmatter, I can imagine you are nervous. If the biopsy confirms urothelial cancer, you might be interested in these related discussions:
- https://connect.mayoclinic.org/group/bladder-cancer/?search=urothelial%20&index=discussions

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Retep51 | @peter51f | Jan 20 11:27pm

I am a 73 YO male. In mid Dec I started peeing brown blood and a few days later it turned red. Went to the ER and the CT scan showed growths on my bladder. Last week I had the growths removed during the biopsy procedure. My follow up with the urologist is in a couple days. So we shall see what he plans for recovery. Some of what I read was not very encouraging.
I just got my pathology report. some I understood some I did not.
Recap
A 2.5cm tumor was taken out for pathology. This tumor and 2 smaller ones were removed and area cauterized.
Extensive high grad papillary urothelial carcinoma. OK high grade (not good) cancer.
With Foci of Lamina propria invasion. The cancer cells were detected in next level tissue.
Definitive angiolymphatic invasion is identified. Not sure but sounds like cancer cells in blood and lymph nodes.
Small microscopic focus of muscularis properia not involved in the tumor. I think muscle layer does not have cancer cells

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