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Essential Thrombocytosis symptoms
Blood Cancers & Disorders | Last Active: Feb 13 1:02am | Replies (170)Comment receiving replies
Hello and thank you for reaching out, I live in Canada and no my hematologist has not done any tests. I was diagnosed back in 2019 but all he told me was my platelets are high and did I want to take meds for it, he did not tell me the seriousness of it, then my family DR sent me back to him in September 2024, that is when I started looking into what it was, and what hydroxyurea was, I do not want to take it. I live within 8 miles of a nucurlar plant. My platelets where 807 in September and with diet I got them down to 749 in early November, all I eat is oatmeal, brown rice, fish, dark chocolate, ginger, mushrooms, onion, garlic, berrys, whine, coffee and rasins. January 15 they where 739, they diden't go down much because i started drinking lactose free milk, creamchees, and cream. I am only 95 pounds, so i need more food.
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Unfortunately, if you haven’t had DNA testing and aren’t on Hydroxurea or some other medication to lower your platelet count , I wonder if your special diet will help . ET is a gene mutation that attacks your platelets and overproduces them , sometimes causing Thrombosis , and at worse , strokes . After DNA testing and a bone marrow biopsy , my Oncologist told me diets nor any other underlying medical issues and nothing I could have done , caused the ET . I started having symptoms last summer after seeing my platelets moving slowly up . I had extreme fatigue, mouth sores , migraines , UTI’s . I was reluctant to take a chemo drug ( Hydroxurea) , but with the excellent advise from my new Hemo:Oncol, my symptoms have subsided and I have had no side effects so far . Please make sure you explore all avenues before you have all the information on this cancer . Good luck !