Avoiding financial destitution with long Covid
Hi all,
I have a thread going about post-exertional malaise, but I also wanted to get some advice on finances while dealing with long Covid. Up until this point (I am seven weeks out from the initial infection), my work has been great about letting me work from home and even go into the negative with my paid time off, but another crash this week means that I am, yet again, not going to make the 30 hour minimum I need to work to maintain full time status. In fact, I have only been able to meet that 30 hour/week goal once since I got sick. I need to have some income, because ALL THE BILLS, but I don’t know what options I have.
Can you share how you are managing to survive financially while dealing with long Covid? Are you working part-time and getting state/federal assistance? Are you not working and on short-term or long-term disability? Can you also share the challenges or obstacles that you have faced trying to get financial support, and how you overcame them? I am just terrified right now about how my family and I will survive as I face the reality that I may not be able to work full time for the foreseeable future.
Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.
I got Covid in Jan 2022. But before I had gotten Covid I was vaccinated in 2021. My body started changing soon after the shots but at the time didn’t think about it. I had body pains the burning like I’ve never felt. I was diagnosed w Fibromyalgia after the shots and before Covid. I had just left a 25 yr marriage and a lot of changing for me. After being in bed with Covid for two weeks then into a nose surgery more and more I just wasn’t myself. Meanwhile doctor bills were adding up faster than the days turned to night. Then to clinics, procedures, none that were helping a bit. Just kept gaining more symptoms and all tests neg. I had worked at my job basically my entire adult life. Started in 98 and started full disability through my job I paid into maybe July last yr. I knew nothing about any assistance. I charged all my cards up paying doctor bills afraid nobody would see me. Well after I lost control I learned that the doctors mostly all have assistance while your getting back on your feet. Mostly can be filled out online. There are documents to upload such as monthly income from last 6 and 3 months if I’m thinking correctly and pay stubs showing your income. I’m not sure if I could had gotton gov assistance bc I didn’t know to try but I may had been able to get food assistance specially since I was on short term then long term disability. I had a hard time following and keeping up w everything that was always needed from me but Covid has really screwed up my mind and I get really confused and brain fogged a lot and have nobody to help me. Not one friend. I suggest applying for assistance for food, medical bills, health insurance, just anything you can that can help carry you through to I pray is your recovery! I wish I would had known to do all this before I was on totally disability. I had to sell my home I just updated and loved after my divorce. My entire family (siblings, nieces, my own daughter my couple of hat I thought were my best friends even)couldn’t understand how serious My health issues were called me a liar and left me all alone without a friend in the world. To me the world ended and I was left alone. Still today I moved to another state trying to deal with my health and the heartbreak my own family left me to deal with alone. I’m 47 and I’ve never been alone. So depression adds to a lot of the symptoms also. A lot of doctors seem to just repeatedly say that’s why a lot is happening to the body. It has truth but there is things happening to your body. I’ve lost alot of my muscle mass and have constant neurological burning sharp breath taking pain everyday. Heart pultations, migraines, days of sleepless nights, haven’t been able to wear shoes Except if I have to bc my feet burn so bad and get numb. My tailbone feels like it fell on it and that shocking pain does not go away. I have an up and down my spine, my face stays tingly and tongue numb. Then I can’t even talk right. Fingers and hands stay numb and I’m always dropping everything or forget him holding anything.This all started in the first year and a half, I’m at 3 yrs since Covid and 3 + yrs since the vaccines that seemed to be dated right for the oncome of all my symptoms. A old friend I hadn’t talked to in 26 yrs came to visit and he brought me to live with him once he seen how dangerous it was to be by myself after losing balance and falling out of the shower, hitting my head on the toilet and the whole left side of my body hitting the tiles floor hard. Took me like 2 + months for the bruising to go away. If it weren’t for him idk where I’d be or if I’d even be alive. Saying all that to show you that I didn’t think a flu/covid would take me out! I finally left a unhappy 25 yr marriage, was “allowed” to have friends, and was for once able to be my own person and spend time with my family and share and make memories. After 1 yr my life went to hell and nobody plans on this. Don’t let it take more than it already is from you. It will make you feel even worse. It can be devastating dealing with some of the people you have to bc a lot of these workers are lazy but it’s awesome your still able to hang in there, get some help and assistance to help you keep moving forward. If your like me and don’t know the “system” it’s all over the place but you can get help to keep you and your family afloat. Sorry this is so long. I have problem finding words and getting out what I’m trying to explain. I apologize. I hope things get better for you and your healing keeps on healing!