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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: 2 hours ago | Replies (115)

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@rhollis

You need a hematologist who specializes in myeloproliferative disorders. Maybe you can find one in network?

Many of the research hospitals have specialists in this area: Mayo, MD Anderson, Duke, etc.

If you don’t think you’ll be able to seek a second opinion, I would ask your Dr whether you have a CALR mutation that is causing ET, and if so, whether she has considered ordering a bone marrow biopsy to confirm her diagnosis.

You might also ask her if she can specifically refer you to a specialist.

I sought a second opinion because I was asking questions that my Dr did not seem to be able to answer. It clearly was beyond his expertise.

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Replies to "You need a hematologist who specializes in myeloproliferative disorders. Maybe you can find one in network?..."

I am so sorry for all you have been through.

Thank you for your extremely helpful advice.