Recurring shingles

It may be that you have “cold sores” on that knee.
Herpes simplex is capable of colonizing sites other than
the area around our mouth.
Your doctor can send out a culture if you want to find out. Longer term treatment with oral antivirals such as
Valacyclovir daily has been used safely for prevention . If you don’t
want orals topical antiviral meds will help when it occurs.
Have you noticed any triggers for your outbreaks?

Please try this:

1) have your doctor check out your iodine levels just in case they are low.
2) Supplement with iodine 12.5 milligrams and
3) Take a 500 mg pill of lysine in the morning and another 500 mg of lysine at night.
When you feel better (possibly in a week) , take the above combo for three more weeks to put the virus in remission. You have nothing to loose. Try it.

Stress is my trigger. And I take Valacyclovir when I feel the shingles come. She does not want to put me on a daily antiviral medicine. And does not recommend the shingles vaccine. I will ask about a topical. Thank you.

Why would your Dr. not recommend the shingles vaccine? I might be getting a second opinion on that one.

This is NOT medical advice, as I am not a medical provider.

However, I have persistent sarscov2 infection. This virus activates dormant viruses- like epstein barr and shingles. I have had shingles several times since I had covid, even though I was vaccinated for shingles. Yes, shingles are quite painful.
Your symptoms do sound like many of the same symptoms that the millions of people who have “long covid”, or post covid sequela syndrome (pcss).
Most physicians do not know anything about pcss, as it is only a 5 year old disease.
You could ask your doctor about pcss.
Good luck.

My doctor said that it is not recommended under the age of 50 and insurance will not cover it for my age either. This is why I am inquiring on this forum.

Got ya. I think that it is 60 or 63 they start paying for it. My sister got the shot when she was under 60 and it cost her $300.00. All I know is . . . . you don't want to get those shingles.

The shingles vaccine would not
help with your current outbreaks.
Good idea to keep it covered to avoid transmission with skin to skin contact when it is active.
Treating the outbreaks is the most
reasonable approach. Sorry you have to deal with the nuisance recurrences. Have you seen a dermatologist for management?

I know your post is almost a year old but I just saw it. I, too, have recurrent shingles with my first occurrence when I was 20. My outbreak location is my forehead and when it first happened, I thought it was just acne. By the time I got to the doctor, it was really bad and had gotten into my eye. I can relate to the tingling at onset; the standing anti-viral script that I keep with me at all times; the incredibly intense pain; and the embarrassment when people see a 60-something year old with, from a distance, looks like an acne event. I did have the shingles vaccine when I hit the magic age and promptly had a mild occurrence. Doc told me of three main triggers and he was 100% correct: lack of sleep, stress, and sunlight (needless to say I NEVER go outside without a hat). In fact, I went outside on a fairly overcast day a week ago with a lot of stress in my life right now and little sleep for 3 weeks and – you guessed it – I have an occurrence right now. As soon as I feel the tingling and see that irritation, I immediately begin the anti-virals, put zinc oxide on the area, and shut down everything to rest for a few days. No phone calls or work or anything; just rest. My doc is really understanding so he also will prescribe Tramadol for pain when I message him at onset (not supposed to take aspirin products with chicken pox or shingles). Someone mentioned that your doc should test the area to make sure it is shingles (zoster) and not simplex and while that is an option, the difference in treatment is not that different. The test showed mine was zoster so, lucky me, I’m one of those who has to live with this as a chronic thing. You’ll learn to deal with it but it takes a while. Sorry you’re going through this. Hope you have gotten some relief.

I also suffer with reoccurring shingles. It figures I would fall into the rare community who does but I have learned a few things. My first outbreak occurred at age 40. I have had it about 12 times in 2 years. Mine are triggered by stress and lack of sleep. As a single mother of 3 children on the spectrum, you can imagine why I have so many recurrent episodes. I immediately take my valcyclovir as soon as I feel the whole body skin pain and feel the flu-like symptoms. It is the warning signs my body gives to alert me. The relentless migraine and extreme fatigue are two of the worst symptoms for me. Its also difficult having to explain my body’s need for rest to others who don’t understand my need to cancel appointments or events during a recurrence. I would recommend either the daily maintenance dose to avoid recurrence or have the meds on hand when you need. It is almost impossible to avoid stress and rest even during a recurrence but my body doesnt care and makes me rest in bed (hence the migraine and severe fatigue). I not sure why your doc wont offer a maintenance prescription since that should be a decision made with your input. Maybe discuss it again with them? If they still refuse and it is something you prefer then my advice is to find one who will honor your requests. Its hard to live with reoccurring shingles but you are not alone in this community! You will learn to manage it better each time.