What happens after Tymlos?

I wonder why so many docs push prolia over everything else, given all the drawbacks I've heard here? I'm still on Tymlos but dreading the decision on what to do next. My doc mentioned prolia too, but I'm going to seek another opinion. No way, no how will I go on that drug as someone in their late '50s. I'd have to be on it for what...like 3 decades? Crazy.

@katwhisperer My rheumatologist is suggesting the exact same thing. I am 64 and have longevity in my family. Prolia sounds like a life sentence with significant draw backs. Every time I press my rheumatologist on the downside of Prolia he downplays side effects entirely. Tells me I have a 20% chance of being wheel chair bound within 5 years and it’s just hard for me to believe. I’ve always had good conditioning; my main sin is that I am small and small women seem to be afflicted with this condition the most. Hoping an alternative comes up to Prolia before the end of Tymlos. I live in a medical black hole out here so there really isn’t a way to get a second opinion unless I am willing to travel extensively.

I too live in a medical black hole. I found great comfort and confidence with Keith Mccormick. Well worth the consultation fee. Sent in my blood work first. Also read his book Great Bone first so I could ask better educated questions.
Be aggressive with your Doctors. Get the tests,referrals, whatever you need so you feel good with YOUR decision. Best of luck.

@redlo I have a consult in two weeks with the Dr. Lucas team from a private organization. The consult is free but it looks like it may be a twelve month commitment that I may not be able to afford. I will indeed look into Keith McCormick; I have seen his name referenced here in this forum frequently. Thank you for the response. I’ve had other health issues, but this one has me in a panic. So happy I found this forum. Thanks again!

I am familiar with Dr Lucas. I follow him too on utube. I did not want the 12 month commitment either. I highly recommend Keith's book Great Bone. Especially if you have other health issues. Very knowledgeable. Gives different options for people with different ailments. 🙏

@redlo I have seen Keith McCormick referenced many times on this site. I’ll get the book. Thank you for mentioning the ‘twelve month commitment’ issue. I just don’t think I can afford the Lucas program. I also don’t appreciate that little bits of information come with a price at every turn. I understand making a living, but not making a killing. I’m retired and do not have limitless financial resources. Thanks again❣️

@lhankins McCormick does in-person and phone consultations for $350 (initial consultation) and $85 thereafter. Another option is a second opinion with an endo. I sued the Castle-Connelly top doc list. https://www.castleconnolly.com/topics/endocrinology-diabetes-metabolism/what-is-endocrinology-diabetes-metabolism

@windyshores
Thank you for this additional information. I am going to assume that you used, not sued the Castle-Connelly site to find a specialist😉. I see an Endocrinologist within 90 miles of me so that is doable. I will check it out stat since I convert to Medicare in a few months and fear I will have even more trouble with options. Hope I am wrong and fingers are crossed! Thank you!!