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Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2, 2024

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

haj | @haj | 21 hours ago
In reply to @pghspinupgal "i’m trying to be positive i really am, i was a very active wife mom, and..." + (show)
@pghspinupgal

i’m trying to be positive i really am, i was a very active wife mom, and my job, now my balance is wobbly im embarrassed to go anywhere , looks like im drunk or sumthin , im in alot of pain but only take gabapentin. My PCP won’t give me anything for pain so she referred me to a pain clinic and she didn’t wanna give me any pain medicine. She wanted to put me on some sort of patch that was lasted three days buprenorphine patch or something like that.? i refused , ny copper was very low , 5 normal is 140 i get iron infusions once a year , b12 shots , idk .. im soo hopeless .. I feel like nobody will listen and I’m being medically gaslit. and being denied pain meds bcuz of the way i look .

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Had two stents put in me two months ago on left leg. Now my right leg numb all the time . Going no where with this neuropathy. Pills and garbage never had this problem before. I’m lucky I get two hours of sleep a night.

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extet | @extet | 17 hours ago

Is there anything that works for peripheral neuropathy?

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1 reply
debbiehirsch | @debbiehirsch | 16 hours ago

I’ve had neuropathy on my hands, feet and legs. I’m thinking of trying the scrambler treatment. Has anyone tried this? It’s supposed to scramble pain signals and get rid of pain or decrease it.

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Mentor
John, Volunteer Mentor | @johnbishop | 16 hours ago
In reply to @extet "Is there anything that works for peripheral neuropathy?" + (show)
@extet

Is there anything that works for peripheral neuropathy?

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Welcome @extet, While there is no real cure for neuropathy there are many available treatments that offer some level of relief. It can be a confusing journey trying to find what helps each of us and there are a lot of members on Connect that have shared what has helped them. I shared my neuropathy journey in another discussion along with other members here - Member Neuropathy Journey Stories: What's Yours? - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

There are also many other discussions and member comments on what has helped. Here's a link to the list of discussions and comments - https://connect.mayoclinic.org/search/?search=neuropathy+what+helps.

The Foundation for Peripheral Neuropathy has a pretty comprehensive list of treatments including complementary and alternative ones here - https://www.foundationforpn.org/treatments/.

If you don't mind sharing, how long have had neuropathy and what symptoms do you have that bother you the most?

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Leonard | @jakedduck1 | 9 hours ago

@kgitti
Has Topamax and gabapentin affeted your vision?
Jake

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