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deanna529 avatar

Side Effects of Mavacamten (Camzyos)

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 2 9:22am | Replies (79)
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Profile picture for tojk @tojk

I have been taking Camzyos for about a year. 4 months ago my right leg began to atrophy and weaken and is now significantly smaller than the left. I recently saw a physician who suggested it could be nerve degeneration. I am awaiting the results of an MRI. Anyone else experiencing this?

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Replies to "I have been taking Camzyos for about a year. 4 months ago my right leg began..."
Debra, Volunteer Mentor | @karukgirl | Jan 19 9:40am

Hello @tojk, and welcome to Mayo Clinic Connect. I'm glad you found this online support group and posted your question. If there is another member who shares your same situation, I hope they can respond and share.
While you wait for your MRI results, have you checked on the Camzyos site for patients?
Here is their link:
https://www.camzyos.com/
How is your HCM doing on Camzyos?
When do you see your doctor again?

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tojk | @tojk | Feb 2 4:43pm

Where else can I go to find out if others are experiencing the same issue? i've been told it is nerve deteriorating and it is very painful. Others have mentioned leg numbness which is also a nerve issue.

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Justin McClanahan, Moderator | @JustinMcClanahan | Feb 4 7:15am

Hello @tojk,

I combined your discussion with an existing discussion titled:

"Side Effects of Mavacamten (Camzyos)"
- https://connect.mayoclinic.org/discussion/side-effects-of-mavacamten/

Many members have shared their experiences with varied side effects and may have some insight to share. @tojk, were you able to get the results of your MRI and discuss them with your provider? Were they able to find any results or potential causes for your atrophy?

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