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Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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Would that be the nooro search massager
Tried that to no luck I also chronic edema
Guess I will never find relief until I’m 6 foot under i have come to that conclusion
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1 ReactionI find that electric stimulation is not for me. In fact,the symptom are worse than without this treatments. I started with Senexa treatments that produced a cold/burning feeling on my feet that now gets worse with time. Then there was an implant on each side of my column that was supposed to make the brain to not receive pain impulses and alleviate the pain on the back of my thighs. That also did not work for the numbness and cold/burning and tingling on my feet. So, I am trying the Nooro foot massager and contrary to the makers claims, it has not done anything for me. Hope they reimburse me the cost as promised. Maybe some might benefit from one or all of these devices, I think they are a waste of money.
Does anyone have experience with lions mane supplements? I’ve heard that it’s a great supplement for many things.
Welcome @jeannieflores, Here's a search of Connect showing posts by members discussing Lion's Mane and neuropathy - https://connect.mayoclinic.org/search/comments/?search=lion%27s%20mane%20+neuropathy.
If you don't mind sharing, what type of neuropathy and symptoms do you have?
Hubby has PN which is getting progressively worse. He is not diabetic. Acupuncture took away most of the pain but the numbness is progressively climbing up his legs. He also had it in one thumb. I worry about him stumbling. He takes Mentanx, R-alpha lipoic acid and I’m wondering if the lions mane would help. He doesn’t have CDIP so doesn’t qualify for infusions. I try to massage his feet and legs with essential oils at night but nothing seems to help helping his numbness. So sad….
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4 ReactionsYou might want to check out the complementary and alternative treatments listed on the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
i’m trying to be positive i really am, i was a very active wife mom, and my job, now my balance is wobbly im embarrassed to go anywhere , looks like im drunk or sumthin , im in alot of pain but only take gabapentin. My PCP won’t give me anything for pain so she referred me to a pain clinic and she didn’t wanna give me any pain medicine. She wanted to put me on some sort of patch that was lasted three days buprenorphine patch or something like that.? i refused , ny copper was very low , 5 normal is 140 i get iron infusions once a year , b12 shots , idk .. im soo hopeless .. I feel like nobody will listen and I’m being medically gaslit. and being denied pain meds bcuz of the way i look .
I agree been searching for weeks. Toe pain is bad on me.