Swallowing hard 7 wks after radiation: Will it get better?

Posted by bri3sd @bri3sd, Jan 14, 2025

My husband on 10/31/24 completed 7wks of head and neck radiation for stage 4 squamous cell. The act of swallowing still hurts my husband. Is it going to get better for him?

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Profile picture for William Olsen, Volunteer Mentor @hrhwilliam

Hi @bri3sd Welcome to our Head and Neck group.
Swallowing likely will be a challenge for months. My experience is it either gets easier or we just get used to the difficulties.
There are roughly fifty muscles involved with a simple swallow. Many of those muscles were radiated and have stiffness as a result. In addition, likely he suffers from dry mouth, a common occurrence again from being zapped.
Radiation recovery is similar to a serious burn recovery, months if not years, years if not ever. The scars (internal) may never completely go away.
I had to learn how to eat again. And not just how, what. Some foods are off the list as they cannot be easily swallowed. I am the last one finished at the table, small bits, lots of chewing, plenty of liquids to chase.
Your husband can also seek swallowing therapy, yes, it’s a thing. Are there specific foods difficult to swallow?

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Thank you. Just swallowing water is difficult. Thats all he us swallowing right now

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Profile picture for bri3sd @bri3sd

He hasn't swallowed food yet. Still using peg tube. Swallowing water is still a struggle and says his throat is raw and still hurts something aweful. I can't imagine.

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He could perhaps try warm chicken or beef broth, Jello, or even tea or coffee initially. It does take time especially since he was on a feeding tube, a bit of re-learning. Hard work and courage. It isn't easy this recovery stuff. Better days ahead.

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It sucks. Hard to watch him struggle.

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Profile picture for johnbonani @johnbonani

I agree with all the recent posts above. Swallowing will definitely be an issue but the degree can vary for each of us. For me, I'm 7 months post 35 radiation sessions/chemo and my swallowing just this week took a turn for the better. Yay!! I've been living on soups, shakes etc. but I can now eat many more foods as long as I wash everything down which is fine with me. Hang in there, it's all about time and it will get better

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@johnbonani I had a similar duration treatment for SCC, but today I'm only 2 months out. Thanks for your comment and advice!
Currently, swallowing is a like my workout routine. Tylenol before a meal seems to help and very small sips of room temp water with every bite are mandatory.
It's a chore but I keep pushing myself everyday to find soft compatible food. Every swallow hurts, but surprisingly certain biscuits (with jelly) and even certain pizza crusts are possible to take down.
It's encouraging to see you and others making gains after treatment.
Thank you again.. please keep posting!

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Profile picture for bonepool @bonepool

@johnbonani I had a similar duration treatment for SCC, but today I'm only 2 months out. Thanks for your comment and advice!
Currently, swallowing is a like my workout routine. Tylenol before a meal seems to help and very small sips of room temp water with every bite are mandatory.
It's a chore but I keep pushing myself everyday to find soft compatible food. Every swallow hurts, but surprisingly certain biscuits (with jelly) and even certain pizza crusts are possible to take down.
It's encouraging to see you and others making gains after treatment.
Thank you again.. please keep posting!

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@bonepool Hopefully here are some more encouraging words... it's hard to believe my post you referred to was when I was 7 months post treatment. Now I'm a year and 7 months! Seems like yesterday when swallowing was so painful I thought it would never get better. So this tells me two things. One, time goes by fast even though I know it doesn't seem like it when you're suffering and secondly this thing we're all going or have gone through without a doubt gets better slowly but it does continue to get better with time. Keep trying to find anything that you can get down. For me it was frozen wontons from the supermarket I would boil in chicken broth. Once I came off the feeding tube I lived on only this for months before slowly introducing other foods. BTW Presently I can eat whatever I want, still need sips of water but no big deal. Loving life again! Keep fighting and stay positive. Better days are coming.

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Yes it will but it takes time and effort to strengthen the muscles needed. I faithfully did a series of exercises (I think recommended by Sanford University…speech pathology) to address this right after I had surgery and continued after my radiation therapy ended (late September to end of December). For a brief period of time towards the end of radiation (10 days ) I was on a liquid diet but otherwise was on a soft diet of solid foods. Today, six weeks after active treatment concluded I have no restrictions on my diet and can tolerate most foods except for bready foods & salty nuts that I have difficulty with due to dry mouth symptoms.

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Profile picture for bonepool @bonepool

@johnbonani I had a similar duration treatment for SCC, but today I'm only 2 months out. Thanks for your comment and advice!
Currently, swallowing is a like my workout routine. Tylenol before a meal seems to help and very small sips of room temp water with every bite are mandatory.
It's a chore but I keep pushing myself everyday to find soft compatible food. Every swallow hurts, but surprisingly certain biscuits (with jelly) and even certain pizza crusts are possible to take down.
It's encouraging to see you and others making gains after treatment.
Thank you again.. please keep posting!

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@bonepool I had radiation and chemo about 18 mo ago for tonsil cancer. I received swallowing therapy at Gibbs Cancer Center that was very helpful. It consisted of 3 or 4 sessions and "exercises" to do at home.

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Profile picture for albion223 @albion223

Yes it will but it takes time and effort to strengthen the muscles needed. I faithfully did a series of exercises (I think recommended by Sanford University…speech pathology) to address this right after I had surgery and continued after my radiation therapy ended (late September to end of December). For a brief period of time towards the end of radiation (10 days ) I was on a liquid diet but otherwise was on a soft diet of solid foods. Today, six weeks after active treatment concluded I have no restrictions on my diet and can tolerate most foods except for bready foods & salty nuts that I have difficulty with due to dry mouth symptoms.

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@albion223 Same here, my eating restrictions were short lived. The bread does suck the saliva right out of my mouth. Sandwiches are still not a pleasant to eat. I prefer eating anything with a wet/moist factor. What I really come to enjoy is eating my meats with Au jus sauce. When I'm at a restaurant I ask for Au jus sauce and they usually have it. My wife makes it at home too. It was a game changer that added flavor and moisture.

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