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Polymyalgia Rheumatica treatment options
Has anyone experienced complete management of symptoms at onset of disease with Prednisone and then experienced a major setback while decreasing the dosage? If so, what treatment plan was used? Also, has anyone had any success with any other prescribed medicines in the treatment of the disease? My husband was diagnosed three months ago and with first major dose of Predison (60mg) he improved 100% with symptoms totally subsiding. The symptoms returned when the doseage was reduced to 20mg. He is currently taking 40 mg but his symptoms have never completely subsided again. His rheumatologist started him three weeks ago on Methotrexate as well in hope to use this med as treatment and take him off the Predisone. Thus far the treatment plan does not appear to be working. My husband is also experiencing most side effects from the use of long term Predisone which is also a reason for considering an alternative treatment.
Thanks and appreciate any information provided.
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I have PMR and am currently feeling very well! I have not used prednisone, but have been on Low Dose Naltrexone for 4 months. It was prescribed by a naturopath. There has been a steady improvement.
I was diagnosed with PMR in July 2024 along with suspected GCA. I was on 60 mg Prednisone for a month and then began my taper. The body/joint aches went away within a couple of days of beginning on 60 mg. It was not an aggressive taper. By the time I got to 8 mg. on Decenber 1, 2024, my initial symptoms had returned. I tried to tough out the month of December on 8 mg., but my pain increased to the point I increased my Prednisone up to 13 mg. Been on 13 mg for a week or so and note an improvement. My rheumatologist order Actemra infusions for me. I will start that next week. Once every 4 weeks. I'm hoping that the Actemra is my silver bullet.
Wow Tx for that feedback. I will look into that.