Squamous Cell Vulvar Cancer: Who out there has this cancer?

Posted by bobette1 @bobette1, Oct 10, 2022

Just diagnosed a week ago. Who is out there with this cancer? Looking for advise, tips and what to expect as I start my journey. TIA

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Thank you for sharing what you are going thru. I am thankful my radiologist treated my condition, I am cancer free but had no idea about any possible side effects. Rectum prolapse definitely interferes with quality of life. What a surprise & frightening at the same time.
Does any of this ever go away or is this the new me??

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@andwho

Thank you for sharing what you are going thru. I am thankful my radiologist treated my condition, I am cancer free but had no idea about any possible side effects. Rectum prolapse definitely interferes with quality of life. What a surprise & frightening at the same time.
Does any of this ever go away or is this the new me??

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@andwho, here's some information from Mayo Clinic
- Rectum Prolapse https://www.mayoclinic.org/diseases-conditions/rectal-prolapse/symptoms-causes/syc-20352837

You might find these related discussions helpful:
- Rectal Prolapse: What are my options?
https://connect.mayoclinic.org/discussion/rectal-prolapse-1/
- Anyone had bladder, rectal and uterine prolapse surgery?
https://connect.mayoclinic.org/discussion/bladder-prolapse-rectal-prolapse-and-uterine-prolapse-surgery/

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@bobette1

@westnp1 how long ago was your treatment? How long after radiation and chemo did u start to get ur life back? I am so over this....#cancersucks

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I was diagnosed with vulvar cancer stage 1b squamous cell back in may 2023. No surgery tumor was too big. 32 rounds of radiation 3 rounds of chemo. Pet mri has been clear. Still some side effects that no doctor tells you about or prepares you for. I guess it’s better than having cancer but my quality of life has changed. Do you have any side effects you can share?

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@bobette1

I had radiation, chemo and surgery for my vulvar cancer. I didn't develop those symptoms however I still have issues. My chemo/radiation ended March 2023. I was still having lots of discomfort. I do find it I take miralax every couple of days that does help. Also if you are offered pelvic physical therapy please do it. I know it is weird but I was having bladder leakage and once I learned how to strengthen my pelvic floor that helped. Please keep us posted on your journey.

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Has anyone developed rectum prolapse as a result of pelvic radiation?
I was diagnosed with vulvar cancer 1 1/2 years ago. Been free since radiation & chemo treatment. Thank god but have developed rectum prolapse. Any input?

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@andwho

Has anyone developed rectum prolapse as a result of pelvic radiation?
I was diagnosed with vulvar cancer 1 1/2 years ago. Been free since radiation & chemo treatment. Thank god but have developed rectum prolapse. Any input?

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@andwho I had pelvic radiation for a recurrence of endometrial cancer in 2021. I’ve kept up with my follow-up visits and have shown No Evidence of Disease since finishing the radiation. I did not develop rectal prolapse although I’ve had other effects including an exacerbation of osteoporosis that resulted in a sacral fracture. I know there are all sorts of late effects from radiation therapy and rectum prolapse must be uncomfortable for you. Did your doctor recommend any treatment for you?

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Thank you for responding. I will see my oncologist Monday and see what she says. I’ve self diagnosed myself so I could be wrong! I have been cancer free thank god but one thing is for sure no one has prepared me for what happens after radiation. Radiation has so far killed the cancer but has also left overall damage & side effects. Does anyone else feel the same? Maybe you could share. It would be nice to share our feelings.

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