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Where to turn? Gastritis, Pancreatitis, IBS-C, diverticulitis, c-diff
I have been seeing the same gastroenterologist for 10 years. I have been diagnosed with Gastritis, Pancreatitis, IBS-c, I have had numerous other problems throughout the years, esophagus, diverticulitis, c-diff. I have been on every medication for Acid reflux pills, Linzess, Dicyclomine, Carofate, etc. All the diets, I'm no stranger to the lifestyle of digestive management. That being said, this year has been one of the worst I have ever been through. With Covid, everything was pushed back, and it was video visits. I had 2 edg's and colonoscopies since June. I was continuing to get worse and worse. Extreme nausea, vomiting, bloating, just very sick all the time. I still am. It's actually a lot worse.
So, my GI sends me to the surgeon. He orders tests. My esophagus tests were fine. But my gastric emptying test showed delay. They only told me that they would wait until all the tests were done. I got a message today that I have to deal with GI. No one called or explained that I now have Gastroparesis. I have been very upset with them because none of my medications I have been on for years are working for anything at all. I am dealing with all my other symptoms from all of my other conditions now too. My entire system is continuously acting up. I haven't been able to eat now at all until I absolutely have to. Even drinking water makes me sick. No one is contacting me about how to treat this. I haven't gotten any details about the results of the gastric emptying test from the 11th of December. I weighed 150.lbs on November 24th when I was in emergency and my scale reads 130 lbs. now. I'm being treated like a problem patient because I want answers and help. I don't live a life anymore. I am so sick all the time and I have no clue where to turn to. Can anyone give me some advice?
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They won't do the surgery until the C-diff gets cleared up, I am sure.
WOW! Unless your diverticulosis is an emergency situation (are your extensively bleeding for instance) , I would absolutely run from this situation. C-Diff is an infectious form of diarrhea and has a great impact on the colon. I just had this last fall and ER did an abdominal CT that showed significant inflammation and swelling throughout the entire colon including the rectum. Now imagine operating on that! My GI didn't even want to do a routine colonoscopy when we discussed it a couple months ago. How long have you been on the antibiotics used for this infection? Do you also have an immune deficiency?
I have been to multiple gastroenterologists. The common goal in my experience is to administer a colonoscopy. Beyond that, we enter the sphere of "try this, try that". There is little interest beyond that. This is a specialty of medicine that unfortunately offers nothing for the problem.