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Hailey-Hailey Disease

Skin Health | Last Active: Apr 14 10:55am | Replies (130)

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@huitzilin76

I, too, have had HH for about 20 years, but was only diagnosed a couple of years ago. I’m using tacrolimus ointment, sometimes a steroid ointment when the inflammation is too much. How much magnesium do you take, and does it cause unwanted side effects (like taking milk of magnesia)?

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Replies to "I, too, have had HH for about 20 years, but was only diagnosed a couple of..."

Hailey-Hailey
I have had this for over 40 years. I have recently been started on low dose Naltrexone by my dermatologist, 1.5 mg. capsules. They must be taken every day forever. I started a few months ago and it is the first time in 40 years my skin has cleared up and no erupted or fissured skin.
Also, before, during an outbreak, I used 500 mg keflex 4 times a day, used a combination of bactroban cream and clobetasol cream. Then last year the dermatologist added this other cream to be mixed with the other 2 to stop the odor that the outbreak causes..Metronidazole cream. During the out break, 2 times a day, I did a white vinegar wash. Equal amounts white vinegar and warm water ( just takes a small amount), take a white cotton cloth ( I used a cut up white kitchen flour sack towel) and dip in combination and lightly wring out and dab and hold on infected area. This helps with the bacteria that the HH causes.