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Hailey-Hailey Disease

Skin Health | Last Active: Apr 14 10:55am | Replies (130)

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@danavs

@huitzilin76 and anyone with HH- My dermatologist had me try a compound Naltrexone 3mg caps because my HH had gotten so bad. This drug in 30mg is for some other problem, but scientists discovered it helped HH get well as long as you continue taking the compound. The first thing it did was stop the itching, then the pain and every thing except between the legs & behind was gone. The HH between legs & behind was shrinking. Then I ended up in the hospital where they stopped the drug to see if it was interfering with blood pressure meds. The HH returned with a vengeance! So I called dermatologist to have doctor put me back on the compound, which he did. Now I'm just waiting and praying it will start working again. Just 2 days without compound made such a difference. If your dermatologist will try this one on you, don't let anybody take you off it. It may take a month or more to start working but be patient and I hope it will work for you. It was miraculous how it worked and I intend to keep taking it now and praying it will work again.

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Replies to "@huitzilin76 and anyone with HH- My dermatologist had me try a compound Naltrexone 3mg caps because..."

The naltrexone definitely sounds like something to ask the doctor about!

At the minute I have a bad outbreak,it is the worst yet and it's affecting my mental health.