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← Return to Hailey-Hailey Disease
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What a relief to find others with whom I can talk about this! After scratching my head (and a few other places) for about 12 years, a dermatologist finally diagnosed me with HH a year ago. @danavs , have you tried tacrolimus ointment? It isn't exactly working miracles for me but it seems to be helping. Additionally, I take 4-5 mg of glycopyrrolate to prevent sweating, as the dampness from skin-to-skin definitely aggravates it. Like I said, I'm not all better, but I'm much more comfortable than I was a year ago.
FYI I'm a 41y/o female and have the HH on my outer labia.
Replies to "What a relief to find others with whom I can talk about this! After scratching my..."
This is Dan, my Mother used to get the HH on her upper stomach and under her breasts and I know that she ended up in the hospital for two weeks because she got a secondary infection in the blisters. Married 55 years and we have 2 daughters which both of them have it. Our youngest daughter Eliminates most of the sugar out of her diet, and she stays out of the sun as much as possible, because the sun, sweating and the heat makes it worse. Clobetasol Propionate Topical Solution USP .05% does help. Apply as soon as you see the blisters. It is a prescription. Good look.
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See my post from earlier today. Important to use oral tac, not topical. 5 mg. 2 x daily, with 4.5 mg naltrexone every other day. Won't take long to clear up, and stays gone! Miracle! Tears of joy, and my family has tried EVERYTHING!!!