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kanaazpereira, Connect Moderator. Thanks. HH is because a missing gene causes the skin cells to become unstuck, so laser surgery is out of the question. I refuse any surgery because it messes up the skin so bad. Even the pads they put on chest and under breast to monitor everything for a colonoscopy leaves my whole chest messed up forever. Last time they used juvenile pads and it wasn't quite as bad. Skin on skin causes flare-ups, so I pat skin with corn starch on much of body every day. I have been using corticosteroids for years which is the only thing that helps to keep it from spreading and lessons the pain, but it also causes the skin to become thin. Anti-fungals helps some with the itching. Heat outside and heating in winter inside makes condition worse. I trust my dermatologist with treatment and he also has wonderful, caring bedside manners - which we all need.
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Hailey-Hailey
I have had this for over 40 years. I have recently been started on low dose Naltrexone by my dermatologist, 1.5 mg. capsules. They must be taken every day forever. I started a few months ago and it is the first time in 40 years my skin has cleared up and no erupted or fissured skin.
Also, before, during an outbreak, I used 500 mg keflex 4 times a day, used a combination of bactroban cream and clobetasol cream. Then last year the dermatologist added this other cream to be mixed with the other 2 to stop the odor that the outbreak causes..Metronidazole cream. During the out break, 2 times a day, I did a white vinegar wash. Equal amounts white vinegar and warm water ( just takes a small amount), take a white cotton cloth ( I used a cut up white kitchen flour sack towel) and dip in combination and lightly wring out and dab and hold on infected area. This helps with the bacteria that the HH causes.