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What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: 7 hours ago | Replies (36)
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@tiegerdog

I’m interested in hearing about MF patients experience with Ojjaara. I have had MF for over 40(yes 40) years, with no treatment. My doctors are recommending Ojjaara for anemia and spleen size reduction. I’m particularly interested in knowing about side effects. Thank you for your feedback.

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Replies to "I’m interested in hearing about MF patients experience with Ojjaara. I have had MF for over..."
cindyem | @cindyem | 6 days ago

JAK2 Myelofibrosis
I have been on Ojjarra for almost three months. It is a half dose (100mg) per day. Next month I will go on a full 200mg dose and will report back.
I have not experienced any adverse effects to date. My spleen pain has gone away. My white count is now upper normal. Still waiting for my platelets to stabilize. They range from 600,000 to 900,000. Maybe the full dose will help with that.
Other than that I feel like nothings wrong. I’m still shocked that I have this disorder.
I feel confident in the hands of the Mayo Clinic expert in Primary Myelofibrosis, Dr. Teffari.

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