Does anyone else experience a burning chest with flare-up?
I have both moderate asthma and mild(ish?) Bronchiectasis. When I am fighting a flare up, I get additional mucus, fatigue, and a burning chest sensation. I don't know if this is more asthma or Bronchiectasis. My pulmonologist for BE automatically gives me prednisone with antibiotics in these cases but my asthma/allergy doctor has recently said she doesn't usually give prednisone with antibiotics automatically given the immune-suppressing aspect. I am not able to tell if the burning discomfort is more asthma or Bronchiectasis-related and wonder if others also experience this?
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
I do have GERD. My lung burning is what finally led me here. Pulmonologist did a PFT which he said was normal but did a sputum that came back positive for MAC. I am having a ct on the 17th.
vegita This is not a GERD thread but we've brought up the possibility of GERD/GORD.
What are YOUR symptoms with GERD? Does it not appear to be heartburn that does go along with Acid Reflux/GERD.?
I have constant sputum that is, so it appears, a combination of saliva/moisture and probably some mucus. It is worse after I eat. I also was told I have a small hiatal hernia so not sure what is the reason for the constant sputum/phlegm However in my case it could be being caused by both diagnosis...hiatal hernia and Bronchiectasis. Testing at NJH did not think I have GERD/GORD but I'm not so sure that I don't have it.
Barbara
Mine is less acidic and more regurgitation. I can burp up food after eating.
No matter the difference in symptoms we each, and everyone of us, have, it just ain't fun and life changing. I take it you know all the suggestions to do that go along with Acid Reflux??
Barbara
Not entirely I’ve done the things they seem to make sense. Not eating 4 hours before bed, taking ppis, sleeping in a recliner
This is what I do after what I was told at NJH in Denver and after researching and reading.
Purchased a wedge pillow for the bed to sleep on. Sleep on my left side to position my stomach etc. in the right position at night. Sleeping on left side for BE and Acid Reflux a good idea for us.
Do not eat the foods they say and list as foods not to eat with acid reflux.
Limit or eliminate the foods they say and list as foods to not eat or limit with Bronchiectasis. Try to eat small meals throughout the day and eat slowly.
Yes, no liquids/water or eating 3-4 hours before bed and no water throughout the night if one wakes up.
Do not exercise immediately after drinking a liquid and if you do drink a liquid have a small piece of good healthy grain bread to absorb the liquid in the stomach. I buy Aldi's Graintastic which I really like.
Have you done much research and reading about taking ppi's?
If I haven't mentioned everything that is best to do with Acid Reflux hopefully others will post what I have left off etc.
Barbara
I have. Seems the side effects of being on ppis for a long time are less than the consequences of bronchectasis or further damage to my lungs over time.
Hi. I would be grateful to know if there is a link or list of foods that National Jewish recommends not to eat with Bronchiectasis? Thanks!
There is information on the internet from NJH, Mayo, Cleveland Clinic that make suggestions such as limiting the typical things like fat, sugar and salt, from my understanding.
There is a video given by the dietitian from NJH about diet etc. etc. with Bronchiectasis.
I don't have the website address for it. Maybe someone on this site might have it readily.
Barbara
Honestly I sort dislike lists like this. Some here might also have occasional heartburn/gerd/reflux and sometimes the supposed "low mucus" foods are heartburn triggers. For me it's been trial and error. I eat full fat yogurt everyday and could not live without it! After eating red meat and sugary stuff and heavy carbs, however, I have noticed more gunk the next day.
https://lunginstitute.com/foods-that-cause-and-kill-mucus/
Your mileage may vary! Not really sure how The Lung Institute came up with this list.