DCIS breast cancer?

Posted by jlc082261 @jlc082261, Jun 22, 2023

Has anybody here in this group been diagnosed with DCIS breast cancer?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@lulurussell

No tests, but doctors recommend the medication which I just went off of Anastozole with very bad side effects. I bit better 4 days after, but the awful panic attack rushes still with me this morning. Feel so alone , never received education to understand if there are other choices.
I agreed to radiation finished after Christmas with one week every day. I loved my Radiologist that explained my early/small lump would only need less treatment, and the newer partial breast area instead of the whole breast.
I would like any input you may have, as it has been hard doing this alone with no support.

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Hi
I too am single and going through this journey alone although I do have some very good friends that are supportive but family not at all so thankful I found this website where you can share what you're going through and people are so supportive I send hugs and healing to you and I hope you find peace in knowing you're not alone

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I was diagnosed with DCIS in January after a biopsy. Stage 0, Grade 2, estrogen positive. I have had 1 lumpectomy and have to have a 2nd one this Friday to clean up a margin. Today I'll be meeting the oncologist who will be working with me. I'm probably looking at radiation and maybe hormone therapy but I won't know until after today. This has been quite a journey so far - my annual mammogram in December was suspicious which started the whole thing off. My family history of breast cancer is awful so for me it was never 'if' but 'when'. I'm now 72 and feel lucky I've made it this far with no cancer, and I'm feeling very thankful that the prognosis is good. My Mom had it and beat it twice! But oh, the journey is still difficult, isn't it? Like a friend said 'it's still cancer' and that changes everything. I'm so glad I found this site because we all need help in making decisions and voicing our fears and concerns. I wish us all the strength we need to battle this.

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@pattier

I was diagnosed with DCIS in January after a biopsy. Stage 0, Grade 2, estrogen positive. I have had 1 lumpectomy and have to have a 2nd one this Friday to clean up a margin. Today I'll be meeting the oncologist who will be working with me. I'm probably looking at radiation and maybe hormone therapy but I won't know until after today. This has been quite a journey so far - my annual mammogram in December was suspicious which started the whole thing off. My family history of breast cancer is awful so for me it was never 'if' but 'when'. I'm now 72 and feel lucky I've made it this far with no cancer, and I'm feeling very thankful that the prognosis is good. My Mom had it and beat it twice! But oh, the journey is still difficult, isn't it? Like a friend said 'it's still cancer' and that changes everything. I'm so glad I found this site because we all need help in making decisions and voicing our fears and concerns. I wish us all the strength we need to battle this.

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Hi Pattier
So happy you found all of us!
We are in your corner and when you may feel alone that’s when we are with you the most!!
I pray everyday for all of us.
I am about to be 76 and happy
I got this far and I have the opportunity to be present for others!! Call out when you are feeling alone!!❤️🙏🏼

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@pattier

I was diagnosed with DCIS in January after a biopsy. Stage 0, Grade 2, estrogen positive. I have had 1 lumpectomy and have to have a 2nd one this Friday to clean up a margin. Today I'll be meeting the oncologist who will be working with me. I'm probably looking at radiation and maybe hormone therapy but I won't know until after today. This has been quite a journey so far - my annual mammogram in December was suspicious which started the whole thing off. My family history of breast cancer is awful so for me it was never 'if' but 'when'. I'm now 72 and feel lucky I've made it this far with no cancer, and I'm feeling very thankful that the prognosis is good. My Mom had it and beat it twice! But oh, the journey is still difficult, isn't it? Like a friend said 'it's still cancer' and that changes everything. I'm so glad I found this site because we all need help in making decisions and voicing our fears and concerns. I wish us all the strength we need to battle this.

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Welcome, @pattier. Did you learn more about your treatment plan? How did the meeting with the oncologist go?

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Hi there, just wanna say how proud I am of everybody in this group. You are amazing warrior in my eyes and I am here to support you. So I was diagnosed with DCIS…stage one. I had a partial lumpectomy, everything was removed.i did the radiation and I’m on the estrogen blocker because I am apparently high estrogen levels and post menopause. had my follow up mammogram and there’s either fluid or a benign cyst in the area of where lumpectomy was I didn’t know if this was something normal that happens. It’s just the whole thing is scary. I did more research and I’m gonna work on my diet intake on taking in more low estrogen foods to see if this will help for future.
I am grateful for early diagnosis and science in our mammograms I am grateful for my outcome, but I am terrified at the same time. Thanks for listening to me. I hope to nothing but continue to support you in your journey. Hugs.❣️❣️❣️❣️

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@ltlbutterfly1

Hi there, just wanna say how proud I am of everybody in this group. You are amazing warrior in my eyes and I am here to support you. So I was diagnosed with DCIS…stage one. I had a partial lumpectomy, everything was removed.i did the radiation and I’m on the estrogen blocker because I am apparently high estrogen levels and post menopause. had my follow up mammogram and there’s either fluid or a benign cyst in the area of where lumpectomy was I didn’t know if this was something normal that happens. It’s just the whole thing is scary. I did more research and I’m gonna work on my diet intake on taking in more low estrogen foods to see if this will help for future.
I am grateful for early diagnosis and science in our mammograms I am grateful for my outcome, but I am terrified at the same time. Thanks for listening to me. I hope to nothing but continue to support you in your journey. Hugs.❣️❣️❣️❣️

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I haven’t heard of a cyst, but I have heard of fluid or seroma in the place where a lump was removed. If this is fluid, a needle biopsy should aspirate the fluid. This was what my doctor said when he did my last two biopsies.
Are they thinking a needle biopsy? How are you doing since your radiation?

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Thank you, my regular doctor is just gonna watch it, but I have a follow up with the surgeon at the end of the month. We’ll see what they say. It might be fluid or a benign cyst… I know the body doesn’t like empty spots. I’m doing OK after the radiation. I just didn’t expect my skin not to go completely back to normal. It’s still kind of pink with like scar tissue from the treatment, but I figured if this keeps me cancer free I’ll do it. It’s just weird. But I am grateful. I appreciate you.

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@jlc082261

Unfortunately receptors at the biopsy did not have progesterone and estrogen, so I am not eligible for the pill so I will have to have radiation

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So, what length of radiation did u have…..
Had surgery 12/6/24…..estrogen and progesterone negative, grade 3 ……Radiation choices are 16 day or 5 day of stronger rads……
Trying to decide which and what would be repercussions if I do 5 days?

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I’m 76 and trying to decide on radiation which I have been told is needed…..
I had surgery on 12/6/25, where they removed duct,4 cm, intact and took margins around which were clear…
Estrogens and progesterone are negative
Stage O
Grade 3
Seems my choices are 15 days or 5 days at more aggressive level…very concerned of the fewer days due to, maybe, more side effects….
Anyone similar out there, or what you did and why and results?
Also, since cancer was contained in duct, why cannot have nothing done? So much to know, in so little time….

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@sabra

I’m 76 and trying to decide on radiation which I have been told is needed…..
I had surgery on 12/6/25, where they removed duct,4 cm, intact and took margins around which were clear…
Estrogens and progesterone are negative
Stage O
Grade 3
Seems my choices are 15 days or 5 days at more aggressive level…very concerned of the fewer days due to, maybe, more side effects….
Anyone similar out there, or what you did and why and results?
Also, since cancer was contained in duct, why cannot have nothing done? So much to know, in so little time….

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As you probably know, radiation is used after surgery to reduce the risk that the cancer will come back.
About options for radiation, you might want to read comments in this discussion:
https://connect.mayoclinic.org/discussion/number-of-radiation-treatments-for-whole-breast-cancer-radiation/
Do you have a date when providers want to start radiation?

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