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Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
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HugInterested in more discussions like this? Go to the Neuropathy Support Group.
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I will check out their website. Thank you so much for your help.
SANEXAS?
I have had peripheral neuropathy (non-diabetic) for over 30 years. MS was ruled out after 10 years. A Dr. prescribed a high dose of gabapentin, which has made the pain somewhat manageable. I have pain in both hands and feet. I am now researching electrical stimulation massages, like Nooro, to see if it is worth purchasing. I'm still researching this.
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1 ReactionI am researching electric stimulation massage, like Nooro, that is supposed to relieve neuropathy foot pain. Has anyone tried this? I have had non-diabetic peripheral in hands and feet for over 30 years and have been on a gabapentin high dose, 3000 mg daily, for 20 years. I don't know what I'd do without it. Yet, I worry about using it forever and would love to be able to walk more than 2 miles and ride a bike. Has anyone tried Nooro, or the like?
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1 ReactionHello @kjharbert, Welcome to Connect. There are members who have shared their experience with the Nooro device. You might want to scan through the discussions and comments by members on Nooro. Here's a link to the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=nooro.
If you haven't already seen it, The Foundation for Peripheral Neuropathy has some helpful information for those of us with neuropathy:
-- Living Well with Neuropathy: https://www.foundationforpn.org/living-well/
-- Complementary and alternative treatments: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
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1 ReactionAnyone have success with Tamarack
@sh0rtie Gabapintin did nothing for me. I took it for two years. I have just started taking Alpha Lipoic Acid at 600mg. I think it is helping a little and sometimes I can feel sensations in my toes. I also use leg massagers - the ones you put your legs in. Mine has three different programs and I go through all three every time I use it. That seems to help also. Good luck Laura Henderson
Yes, I tried Nooro. I have little or no pain. Just numbness and tingling and restless and heavy legs. I use a rolling walker for balance. Physical therapy is good for the balance and strengthening the core. Nooro did nothing, I tried Electronic Stimulation- zip. I was given gabapentin, made me dizzy and I really did not have pain. My Ideopathic neuropathy started some years ago while I was still workimg. It was slow at first. That was over 20 years ago. NOw it is up to the knees and starting in the fingers,
There was One Amazon thing that I ordered, which didn’t even work and I returned. The company offered me $50 to give it a good review.
Does this relieve your pain? Can you take short walks without pain? I've been on the NA ALA for 6 days. The same supplement as yours. I buy mine at Amazon. I was on 600mg of the R ALA specialized for 237 days but the pain still lingered. So I'm really hoping this N ALA will work.