1. < MAC & Bronchiectasis

The research of MAC continues

Posted by BlueSplashGirl/ Carolyn @bluesplashgirl, Jan 4 11:51am

https://pmc.ncbi.nlm.nih.gov/articles/PMC7862709/#s7

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Mentor
Sue, Volunteer Mentor | @sueinmn | Jan 4 5:02pm

Here is my favorite new(ish) article.
https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline
If you are able to wade through all the medical terminology, the conclusion is that more effort must be made to determine who is "infected" at a clinical level requiring antibiotic therapy rather than at an incidental level.,

New treatment guidelines are due to be published in the first quarter of 2025 that will have more clear guidance on when to treat and when to use conservative management. Watch for it here!

REPLY
5 replies
cwal | @cwal | Jan 5 7:11am
In reply to @sueinmn "Here is my favorite new(ish) article. https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline If you are able to wade through all the..." + (show)
@sueinmn

Here is my favorite new(ish) article.
https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline
If you are able to wade through all the medical terminology, the conclusion is that more effort must be made to determine who is "infected" at a clinical level requiring antibiotic therapy rather than at an incidental level.,

New treatment guidelines are due to be published in the first quarter of 2025 that will have more clear guidance on when to treat and when to use conservative management. Watch for it here!

Jump to this post

Although I did wade through all of details of the article, I read most of it. I look forward to see the new published Treatment Guidelines. Perhaps it will give more clarification for all of us and our various physicians.

REPLY
1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | Jan 5 10:18am
In reply to @cwal "Although I did wade through all of details of the article, I read most of it...." + (show)
@cwal

Although I did wade through all of details of the article, I read most of it. I look forward to see the new published Treatment Guidelines. Perhaps it will give more clarification for all of us and our various physicians.

Jump to this post

We are ALL waiting for it - including my pulmonologist, who I believe helped with part of the draft.

The aim with 2025 Guidelines is to provide clearer guidelines for when/how to treat for those who are not NTM or Bronchiectasis experts. I am hopeful that life will be better for the many patients who do not have access to the experts.

It is my hope that we will be able to provide a downloadable version (or a link to it) that patients can take to their providers.

REPLY
1 reply
manorhill22 | @manorhill22 | Jan 5 12:45pm

As always, thanks for sharing your research with all of us. It is much appreciated.

REPLY
blm1007blm1007 | @blm1007blm1007 | Jan 5 1:23pm
In reply to @sueinmn "Here is my favorite new(ish) article. https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline If you are able to wade through all the..." + (show)
@sueinmn

Here is my favorite new(ish) article.
https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline
If you are able to wade through all the medical terminology, the conclusion is that more effort must be made to determine who is "infected" at a clinical level requiring antibiotic therapy rather than at an incidental level.,

New treatment guidelines are due to be published in the first quarter of 2025 that will have more clear guidance on when to treat and when to use conservative management. Watch for it here!

Jump to this post

Yes, thanks again and again Sue for and from all of us for your time, research and posts. Great..."favorite new(ish) article."
Barbara

REPLY
bonniesue | @bonniesue | Jan 7 6:15am

Thanks for all your info happy for new clarity

REPLY
helen1000 | @helen1000 | Jan 9 9:56pm
In reply to @sueinmn "Here is my favorite new(ish) article. https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline If you are able to wade through all the..." + (show)
@sueinmn

Here is my favorite new(ish) article.
https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline
If you are able to wade through all the medical terminology, the conclusion is that more effort must be made to determine who is "infected" at a clinical level requiring antibiotic therapy rather than at an incidental level.,

New treatment guidelines are due to be published in the first quarter of 2025 that will have more clear guidance on when to treat and when to use conservative management. Watch for it here!

Jump to this post

So NTM can be the cause or result of bronchiectasis? That is really eye opened.
If the cause/effect is not clear, even if surgery removed the bronchiectasis, NTM may come back eventually and cause bronchiectasis.

REPLY
becleartoday | @becleartoday | Jan 12 4:36am
In reply to @sueinmn "Here is my favorite new(ish) article. https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline If you are able to wade through all the..." + (show)
@sueinmn

Here is my favorite new(ish) article.
https://publications.ersnet.org/content/errev/33/173/240058?ctkey=shareline
If you are able to wade through all the medical terminology, the conclusion is that more effort must be made to determine who is "infected" at a clinical level requiring antibiotic therapy rather than at an incidental level.,

New treatment guidelines are due to be published in the first quarter of 2025 that will have more clear guidance on when to treat and when to use conservative management. Watch for it here!

Jump to this post

Great find! I also like that it is authored by experts other than the ones we see most frequently. Hopefully, NTM/MAC and bronchiectasis are gaining traction in the international community.

REPLY
debinutah | @debinutah | Jan 12 1:00pm
In reply to @sueinmn "We are ALL waiting for it - including my pulmonologist, who I believe helped with part..." + (show)
@sueinmn

We are ALL waiting for it - including my pulmonologist, who I believe helped with part of the draft.

The aim with 2025 Guidelines is to provide clearer guidelines for when/how to treat for those who are not NTM or Bronchiectasis experts. I am hopeful that life will be better for the many patients who do not have access to the experts.

It is my hope that we will be able to provide a downloadable version (or a link to it) that patients can take to their providers.

Jump to this post

Any idea on the timing (release date) of the 2025 guidelines?

Thank you!

REPLY
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